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Winter 2020 public newsletter

Winter 2020 public newsletter

Registry public newsletter for winter 2020 - published January 2020 Including: Registry tops 60,000 patient records Complement-ing clinical data with patient reported out-comes Realising quality improvement in IBD Listening to IBD nurses Taking stock over the decade...

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The IBD Registry – taking stock over the last decade

Taking stock  As the IBD Registry approaches ten years since the concept of collecting real world information on the progress of people living with IBD, it is timely to look under the bonnet at the data collected so far. With over 60,000 records, the Registry is one...

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Summer 2019 newsletter to clinical teams 2019

Summer 2019 newsletter to clinical teams 2019

Registry news for IBD teams - Summer 2019 Including: News Zessly safety study opens for interest Webtool upgrade - down time 17th July BSG 2019 Glasgow - IBD Data and Quality Survey: why do you participate in the IBD Registry? IBD audit requirements Quality Accounts...

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Could your IBD service improve?

Continuing its mission to improve the care that people with IBD receive, the Royal College of Physicians is offering IBD teams an opportunity to participate in a new quality improvement collaborative, consisting of three 1-day learning sessions and supported action...

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IBD Registry has a new home

Following the establishment of IBD Registry Limited as an independent not-for-profit company, we have moved offices to: The IBD Registry The Ebbisham Centre 6-7 Derby Square EPSOM KT19 8AG Telephone (unchanged): 020 393 3969 Contact (unchanged):...

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We’re at BSG 2018

If you’re coming to the BSG Annual Meeting in Liverpool next week, do come and say hello to us – we’re at stand B58 in the exhibition.

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IBD Registry’s GDPR special addition

As we’re sure you know, the General Data Protection Regulation (GDPR) comes into force on 25th May.

This newsletter is to let you know what’s changed at the IBD Registry to be compliant with the new regulations.

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IBD Registry Ltd is a not-for-profit company limited by guarantee - Company Number 11197749.
Our Registered Address is 3 St Andrews Place, Regent’s Park, London NW1 4LB. VAT Number 291683766.