Using the Web Tool

The IBD Registry Web Tool provides a database on a centrally-hosted server accessed through the NHS N3 network. The Web Tool enables data to be captured at the point of clinical care, provides immediate access to a summary of the patient’s disease and current care and can generate clinically useful outputs and basic service profiling information. The Web Tool also has a data visualisation tool embedded in the system to help IBD teams track performance against key performance indicators for biologics. The charts show local data compared with the national standards and the national average performance of all participating hospitals.

The Web Tool has a built-in extract process to produce data files ready for upload to the Registry. Depending on the amount of data submitted to the Registry, IBD Teams will receive reports on the number of registered patients, admissions, surgery, and medications benchmarked against the national Registry data. The Registry Web Tool is the online platform for national IBD Audit from 2017 onwards. The IBD Registry is obliged to make a partial cost-recovery charge to use the Registry Web Tool which is currently £1,000 per year for each Trust database.

To find out more about the Web Tool please contact [email protected]
To register to participate in the IBD Registry using the Web Tool complete and submit the registration form

Approaches to data entry

One misconception regarding the IBD Registry and data entry is that IBD teams must enter all their IBD patient data on the system as soon as possible.  This is not logistically possible nor is it a reasonable expectation of busy IBD teams. The IBD Registry advocates a ‘little and often’ approach to data entry; this is a much more manageable and attainable process for IBD teams and helps secure the long-term sustainability of data entry.

The IBD Registry has a few examples of how IBD teams, participating in the Registry, have tackled data entry:

  1. Enter the first two or three patients each day onto the Web Tool.
  2. Initially only add the biologics KPI data for new biologics patients, once they are all on the system start to enter existing patients.
  3. Acquiring data administrative support from an audit department.
    1. Utilise the Audit department to register the IBD patients on the Web Tool so that the patient record is on the system before patient arrives at the clinic.
    2. Recording the data for biologics KPIs on paper based pro formas which are passed on to the audit team to input into the Web Tool.

Importing your historic RCP biologics data into the IBD Registry Web Tool

To arrange a date to have your RCP biologics data imported into the IBD Registry Web Tool please contact Mark at [email protected]. In order to have your data imported the Web Tool must be placed offline and as a result only a set number of sites can be imported each week. Full details on how to arrange for your data to be imported into the IBD Registry Web Tool are found here.

Help and support for Web Tool users

During the set-up process, please contact [email protected]
Once set up, or with queries about data submission, please contact the Registry team on [email protected] or 020 3725 6150

Biological therapy key performance indicators (KPIs) 2016/17
Please read the user guide detailing instructions on how you enter the data required to fulfil the biological therapy KPIs for 2016/17 using the Web Tool.

Find out more about...


Latest News

IBD Biologics Audit in Quality Accounts 2018/19

Quality Accounts in England We are delighted to announce that the IBD Registry biologics audit has been included by NHS England in Quality Accounts for 2018/19. We encourage all sites to participate in the biologics audit, as it will help to ensure that IBD patients...

read more

Milestone HES reports released!

Data and reporting   Milestone HES reports sent to sites this week Earlier this week, HES reports were sent to all Registry sites that have submitted data to NHS Digital, fulfilling a long-held Registry aim to make information work better for patients, clinical teams...

read more

2017 Review

2017 has been a pivotal year in the development of the IBD Registry. Continued hard work from IBD teams across the country has resulted in 33,321 patient records being uploaded by 53 sites. Thanks to an idea from our Industry Working Group, we set up a data entry...

read more

HES reports

The IBD Registry team have realised a long-held ambition to use routinely collected hospital episode statistics (HES) data to supplement the clinical data collected by sites, in a ground-breaking initiative led by Keith Bodger

read more