Who we are

The IBD Registry is a not-for-profit company founded by three member organisations: The British Society of Gastroenterology, the Royal College of Physicians and Crohn’s & Colitis UK.

Why the RCP is a founder member of the Registry

Our Board

Our organisation is governed by our Board of Directors. Information on our directors and the executive leadership team is given below:

Photo of John Dean

Dr John Dean (Chair of the Board)

Royal College of Physicians

About John

John is clinical vice president (CVP) at the Royal College of Physicians (RCP) and a consultant physician at East Lancashire Hospitals NHS Trust. He is a member of the RCP senior leadership team, with specific responsibility for the college’s strategic aim of improving health and care. In East Lancashire, he works across the health and care system, leading service improvement. He also works as a consultant physician in acute and general medicine and diabetes. He has previously worked in improvement initiatives across the Department of Health, royal colleges, NHS North West, Institute for Healthcare Improvement (IHI) and the Health Foundation.  John was also previously medical director of NHS Bolton, clinical director of medical and elderly service for Bolton Hospitals, and clinical lead for diabetes services in Bolton.

Prof Jack Satsangi

Royal College of Physicians

About Jack

Jack Satsangi is the Lee Placito Professor of Gastroenterology, University of Oxford  and an Honorary Consultant Physician in Oxford University Hospital NHS Trust.  He qualified in Medicine from St Thomas’s Hospital Medical School, London in 1987; and he completed his postgraduate training in clinical and academic medicine in Oxford  as an MRC Fellow and Clinician Scientist, working with Derek Jewell and John Bell. In 2000, Jack succeeded Professor Anne Ferguson as Professor of Gastroenterology in Edinburgh, with the intention of building  on her legacy to develop a centre of excellence in inflammatory bowel disease. He returned to Oxford to take up his present post in 2018.

Jack has combined  care of patients with Crohn’s disease and ulcerative colitis with  basic, clinical and translational research. His areas of clinical interest have centred on complex and challenging  IBD –  and have included the management of severe colitis; the management of childhood-onset disease; the safety and efficacy of biological agents, and of novel therapeutic approaches; and the introduction of personalised medicine into clinical practice.

He has been involved in a number of important research advances including the discovery of cytokine dysregulation in IBD;  the  definition of the genetic architecture of inflammatory bowel disease; and investigation of gene-environmental interactions; disease epigenetics, and multi-omic analyses in biomarker discovery. He  currently is Chief  Investigator of the ICARUS – IBD consortium assessing Covid-19 impact in IBD.

Jack has been Secretary of the BSG IBD Committee, and was the first Chair of the BSG IBD Research Committee. He has led National and Regional NIHR Speciality Groups in Gastroenterology; as well as a co-ordinating a series of international research consortia supported by the European Community, and Helmsley Trust. He has supervised a series of research-active clinicians in UK  and Europe. He is a Fellow of the Academy of Medical Sciences and of the Royal Society of Edinburgh.

Jack has been a Medical Advisor to CCUK for over 20 years; and has acted a Trustee or Committee member to CICRA  and CORE/GUTS-UK. He has led a series of recent initiatives in increasing Patient and Public understanding of research.

Our executive leadership team

Our executive leadership team balances business and clinical knowledge in a combination that allows us best to pursue our purpose.

Liz Dobson

Chief Executive Officer
About Liz

Liz brings to the IBD Registry 20 years of executive and senior management experience from the private and not-for-profit sector, including early stage businesses. She brings both the leadership and business skills that the IBD Registry needs as a new non-profit company, combined with a robust background in operations, and technical understanding that will be of huge benefit to the Registry as it embarks on this next stage of its growth.  Liz’s experience is underpinned by a Sloan Fellow MSc (Business) from London Business School, and BSc (Maths) first class honours.

Prof. Stuart Bloom

Chief Medical Officer

About Stuart

Stuart has been a consultant gastroenterologist at UCL Hospitals in London since 1996. He was chair of the IBD section of the British Society of Gastroenterology from 2006-2009 and National Specialty Lead for Gastroenterology at the NIHR Comprehensive Clinical Research Network (NIHR-CCRN) from 2008-2013. He has a longstanding interest in how we use technology to record outcomes from the clinical consultation and in defining local and national populations of patients with Inflammatory bowel disease with a view to improving treatment and outcomes.

Dr Fraser Cummings

Clinical Lead for Studies & Collaboration
About Fraser

Fraser has been a consultant gastroenterologist at University Hospital Southampton (UHS) since 2009, having completed his clinical and research training in Oxford. As clinical lead for IBD services at UHS he is responsible for developing all aspects of the clinical service. Through this experience he has come to appreciate how critical accurate data is to the provision of high quality patient care as well as informing the development of new care pathways and local services. He is interested in how we record and use data to improve outcomes for patients.

Dr Keith Bodger

Academic Lead

About Keith

Keith has worked a consultant gastroenterologist in Liverpool since 2001 and is currently a Reader in the Department of Health Data Science at the University. He is a former member of the steering group for UK IBD Audit and chaired the inpatient experience sub-group. His research interests are focused on health outcomes and economics in gastroenterology, with a focus on finding better ways to use routinely collected health data to answer real-world questions and on the development of patient-reported outcome measures (PROMs). He developed the IBD-Control PROM which has been adopted as part of the International Consortium for Health Outcomes Measurement (ICHOM) Standard Set for IBD. Keith has a keen interest in promoting the integration of patient-reported outcomes into routine practice to promote better, more patient-focused care.

Dr Nick Kennedy

Clinical Technical Lead

Biography to follow

Structure and Offices

We are a not-for-profit organisation registered in England no 11197749 as IBD Registry Ltd.

Our Registered Office is 1 St Andrews Place, Regent’s Park, London, NW1 4LB.

Our Operations Office (use this address for correspondence) is

1 St Andrews Place
Regent’s Park