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Past Newsletters

Partnering for PINPOINT

The PINPOINT study (the Prospective Incidence of Paediatric-Onset Inflammatory bowel disease in the United Kingdom) is undertaking a UK-wide incidence study of paediatric IBD. The number of children newly diagnosed with inflammatory bowel disease (IBD) each year has...

2020: end of a long, strange year

Taking a much-needed few days rest at the end of a year that I think most of us didn't see coming. Carefully laid annual plans went out of the window in March to be replaced by COVID-19 reactive planning. That included the COVID-19 IBD Risk Tool, our sleeper surprise...

We are hiring – three systems and data science roles

The IBD Registry is a small, fast-moving and innovative organisation working in the world of healthcare data to provide insights and solutions that benefit people with inflammatory bowel disease (IBD). We are looking for three systems and data science professionals to...

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COVID-19 IBD Risk Tool wins award

We were thrilled to win an award at the  Communique Awards for our work in creating and communicating our COVID-19 IBD Risk Tool for people with inflammatory bowel disease (IBD). The 2021 Communique Awards took place on 1 September and recognise excellence and best...

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2021 Annual Report on Biological Therapies in IBD

Clinical teams providing biological therapies for people with inflammatory bowel disease (IBD) are maintaining good practices of care despite increased pressures from COVID-19, according to the latest report from the IBD Registry. The second annual report on the use...

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Reflections in our birthday month

Unbelievably, it’s now 3 years since we set up IBD Registry Ltd as an independent not-for-profit organisation, following the original launch by the British Society of Gastroenterology (BSG) in June 2013. A birthday is a good time for reflection. We're owned and...

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Partnering for PINPOINT

The PINPOINT study (the Prospective Incidence of Paediatric-Onset Inflammatory bowel disease in the United Kingdom) is undertaking a UK-wide incidence study of paediatric IBD. The number of children newly diagnosed with inflammatory bowel disease (IBD) each year has...

read more

Join the team – two Communications roles (we are growing!)

We are recruiting for two great roles in our Comms teams to help tell everyone how we use data to help patients, clinical teams and the NHS If you know someone who is passionate about helping people with IBD, and has the right background in communications to do so, do...

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2020: end of a long, strange year

Taking a much-needed few days rest at the end of a year that I think most of us didn't see coming. Carefully laid annual plans went out of the window in March to be replaced by COVID-19 reactive planning. That included the COVID-19 IBD Risk Tool, our sleeper surprise...

read more

Going purple for IBD Awareness Week 2020

1-7 December 2020 was IBD/Crohn's & Colitis Awareness Week. As the IBD Registry, we work closely with Crohn's & Colitis UK in support of people with all forms of inflammatory bowel disease.  We've taken the great work that Crohn's & Colitis do, and...

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National Lockdown starts (England) on 05 November 2020

The government have announced a national lockdown for England, starting on Thursday 5th November 2020, which includes specific guidance for clinically vulnerable people in England.   There are different rules for the four nations: the new national restrictions for...

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Looking for a Digital Communications Officer

We have a big story to tell everyone, and we are looking for a Digital Communications Officer to help support our upcoming campaign to do just that.   If you know someone who is digitally tech-savvy, skilled at campaign messaging, and can engage audiences with...

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72,331 records – thank you wonderful IBD teams

We are delighted to report that the Registry now holds a total of 72,331 records, following a marvellous submission effort from teams in July with an increase of 4,461 from 57 clinical teams this quarter. A warm welcome aboard to James Paget University Hospital, West...

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The Registry and COVID-19 – to listen to

We have two great resources for you to listen to learn more about the role that the Registry played in supporting clinical teams during the first wave of COVID-19 The role of patient-entered data in overcoming the COVID-19 information challenge In this educational...

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