News

Newsletters

Winter 2020 public newsletter

Registry public newsletter for winter 2020 - published January 2020 Including: Registry tops 60,000 patient records Complement-ing clinical data with patient reported out-comes Realising quality improvement in IBD Listening to IBD nurses Taking stock over the decade...

Summer 2019 newsletter to clinical teams 2019

Registry news for IBD teams - Summer 2019 Including: News Zessly safety study opens for interest Webtool upgrade - down time 17th July BSG 2019 Glasgow - IBD Data and Quality Survey: why do you participate in the IBD Registry? IBD audit requirements Quality Accounts...

Winter 2020 public newsletter

Winter 2020 public newsletter

Registry public newsletter for winter 2020 - published January 2020 Including: Registry tops 60,000 patient records Complement-ing clinical data with patient reported out-comes Realising quality improvement in IBD Listening to IBD nurses Taking stock over the decade...

read more

The IBD Registry – taking stock over the last decade

Taking stock  As the IBD Registry approaches ten years since the concept of collecting real world information on the progress of people living with IBD, it is timely to look under the bonnet at the data collected so far. With over 60,000 records, the Registry is one...

read more
Summer 2019 newsletter to clinical teams 2019

Summer 2019 newsletter to clinical teams 2019

Registry news for IBD teams - Summer 2019 Including: News Zessly safety study opens for interest Webtool upgrade - down time 17th July BSG 2019 Glasgow - IBD Data and Quality Survey: why do you participate in the IBD Registry? IBD audit requirements Quality Accounts...

read more

NEW: IBD Registry, patient consent and the National data opt-out - FINAL  (PDF 150KB)  

IBD Registry Patient information leaflet – April 2019Download here
IBD Registry Large Font/Accessible Patient information leaflet – April 2019Download here
IBD Registry Adult consent form – May 2018Download here
IBD Registry Paediatric consent form – May 2018Download here
IBD Registry A4 poster - May 2018Download here
IBD Registry patient consent guidance for hospitals (England and Wales) - August 2017Download here

 

 

 

Contact us

020 3393 3969
[email protected]

IBD Registry Ltd is a not-for-profit company limited by guarantee - Company Number 11197749.
Our Registered Address is 3 St Andrews Place, Regent’s Park, London NW1 4LB. VAT Number 291683766.