The data submission deadline will be end of July

As we now are the IBD Registry Limited (a separate independent not-for-profit company), we are taking over the Data Controller responsibilities from the BSG. Unfortunately the formal process to complete this change is taking much longer than anticipated, and until this has been finalised the NHS Digital IBD audit platform has to remain offline, preventing the upload of data. We are anticipating that the Data Controller change will be completed, and thus the NHS Digital platform will re-open, by the end of July – and so this is the new data upload deadline. We will inform you, by email, when we have any updates to allow you the time necessary to upload your data.

The UK IBD Registry

The Inflammatory Bowel Disease (IBD) Registry is the first UK-wide collection of anonymised adult and paediatric IBD data for prospective audit and research. Routine clinical information entered once into an electronic patient record at the point of care, can be used to meet many different needs.

The Registry’s main focus for 2016/17 is on biologics, and the aim is to develop a near-complete UK Register of IBD patients on biologics by the end of 2017. Being part of the Registry will give IBD teams:

  • Local data to manage their biologics patients and IBD service more effectively
  • The chance to be part of a national audit of the safety and appropriate use of biologics and biosimilars

The IBD Registry Biologics Audit is part of NHS England’s Quality Accounts 2018/19

 
Biologics audit data submission deadlines:
End of July (date TBC)
28th September 2018
28th December 2018
29th March 2019

 

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