The UK IBD Registry

The Inflammatory Bowel Disease (IBD) Registry is the first UK-wide collection of anonymised adult and paediatric IBD data for prospective audit and research. Routine clinical information entered once into an electronic patient record at the point of care, can be used to meet many different needs.

The Registry’s main focus for 2018/19 has been on biologics, and the aim is to develop a near-complete UK Register of IBD patients on biologics by the end of 2017. Being part of the Registry will give IBD teams:

  • Local data to manage their biologics patients and IBD service more effectively
  • The chance to be part of a national audit of the safety and appropriate use of biologics and biosimilars

The IBD Registry Biologics Audit is part of NHS England’s Quality Accounts 2019/20

 

NHS England Quality Accounts 2019-20 (IBD Audit)

The Inflammatory Bowel Disease (IBD) Audit has been included as part of NHS England’s Quality Accounts 2019/20, and is provided by the IBD Registry. Each Trust should participate in the audit annually and publish a report each June on their NHS Choices website confirming their participation.  The IBD Audit data is part of the main Registry dataset, designed to be as complementary as possible. To assist Trust Audit teams, the IBD Registry provides an additional paid service to help Trusts track and collate their data in preparation for publication.  To find out more about the IBD Audit including the Quality Accounts service, please email: [email protected]

 

Biologics and Biosimilars

The IBD Registry’s main focus for 2019/20 remains on biologics, with the aim of developing a near-complete UK Register of IBD patients on biologic treatments; increasingly important with the growing number of biologics and biosimilars becoming available. We are capturing and analysing this important data closely so that we can provide IBD teams who are part of the Registry with a picture of the evolving biologics landscape:

  • Local data to manage their biologics patients and IBD service more effectively
  • National picture of biologics use, impact and resulting health outcomes
  • The opportunity to be part of a national audit of the safety and appropriate use of biologics and biosimilars

To find out more, including to join the IBD Registry, please email: [email protected]

 

 

IBD Registry and biologics audit data submission deadlines:
11th January 2019 (Closed)
5th April 2019
5th July 2019
4th October 2019

 

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