CAP has re-opened!

The Clinical Audit Platform (CAP) is open again!  You may be aware that during the transfer of Data Controller responsibilities from the BSG to the newly independent IBD Registry Limited that access to the IBD Clinical Audit Portal on NHS Digital’s website was paused. We are delighted to inform that this transfer has been completed successfully and that NHS Digital have now re-opened the Clinical Audit Portal, ready to receive your patients’ details.

Data Submission Deadline – end of September 2018

As we are a little behind in the schedule of uploads to the Registry (the last was in April), we would be grateful if all Registry sites could complete an extract and upload of their data by the end of September (last working day Friday 28 September).

We apologise for the short notice and hope this will not prove too problematic. We are eager to help if you encounter difficulties – please contact [email protected] .

Quality Accounts 2018-19 (IBD Audit)

The Inflammatory Bowel Disease (IBD) Audit is included as part of NHS England’s Quality Accounts 2018/19, and is provided by the IBD Registry. Each Trust should participate in the audit annually and publish a report each June on their NHS Choices website confirming their participation.  The IBD Audit data is complementary to the main Registry data. To assist Trust Audit teams, the IBD Registry provides an additional paid service to help Trusts track and collate their data in preparation for publication.   As a non-profit organisation we are able to keep costs low, and provide this customised service to Trusts for 2018/19 at a cost of £2000 (excl. VAT).

To find out more about the IBD Audit including the Quality Accounts service, please email: [email protected]

 

Biologics and Biosimilars

The IBD Registry’s main focus for 2018/19 remains on biologics, with the aim of developing a near-complete UK Register of IBD patients on biologic treatments; increasingly important with the growing number of biologics and biosimilars becoming available.  We are capturing and analysing this important data closely so that we can provide IBD teams who are part of the Registry with a picture of the evolving biologics landscape:

  • Local data to manage their biologics patients and IBD service more effectively
  • National picture of biologics use, impact and resulting health outcomes
  • The opportunity to be part of a national audit of the safety and appropriate use of biologics and biosimilars

To find out more, including to join the IBD Registry, please email: [email protected]

 

New Home

We have a new home!  Our address is:

The IBD Registry

The Ebbisham Centre

6-7 Derby Square

EPSOM

KT18 8AG

Telephone (unchanged): 020 3393 3969

Contact (unchanged): [email protected]

The UK IBD Registry

The Inflammatory Bowel Disease (IBD) Registry is the first UK-wide collection of anonymised adult and paediatric IBD data for prospective audit and research. Routine clinical information entered once into an electronic patient record at the point of care, can be used to meet many different needs.

The Registry’s main focus for 2016/17 is on biologics, and the aim is to develop a near-complete UK Register of IBD patients on biologics by the end of 2017. Being part of the Registry will give IBD teams:

  • Local data to manage their biologics patients and IBD service more effectively
  • The chance to be part of a national audit of the safety and appropriate use of biologics and biosimilars

The IBD Registry Biologics Audit is part of NHS England’s Quality Accounts 2018/19

Biologics audit data submission deadlines:
28th September 2018 (Closed)
28th December 2018
29th March 2019

 

Find out more about:

 

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