The IBD Registry is a not-for-profit company set up by and owned by three member organisations: The British Society of Gastroenterology, the Royal College of Physicians and Crohn’s and Colitis UK.
Why the RCP is a founder member of the Registry
Our organisation is governed by our three member organisations, who provide two directors each. Information on our directors and the executive leadership team is given below.
Dr Barney Hawthorne (Chair of the Board)
British Society of Gastroenterology
Dr Hawthorne studied medicine at Queens’ College Cambridge, and went on to do his clinical training at the University of Oxford, qualifying in 1983. After doing an MD in Nottingham with Chris Hawkey, he took up a consultant post in Cardiff in 1995. His clinical interests are inflammatory bowel disease and intestinal failure. As well as developing the IBD services in Cardiff, he established and led the Cardiff Intestinal Failure service until 2017.
He was appointed IBD clinical lead for Wales from Dec 2020, and chairs the IBD Wales working group. He is the chair of the board of the UK IBD Registry, and an elected member of the BSG Council. He chairs the Medical Research Grants committee for Crohn’s Colitis UK. He is ex-chair of the BSG IBD section (2015-2018), and was the senior author of the BSG IBD guidelines (2019), He is a member of the IBD UK committee and has been involved in development of the UK IBD Standards 2019, and senior author on the IBD Standards publication (2019).”
Crohn’s & Colitis UK
Sarah is the Chief Executive for Crohn’s and Colitis UK. Sarah is an experienced and successful Chief Executive, and has worked with a broad range of health and patient groups and European patient organisations, as well as government advisory and research bodies. She has also built expertise in education, social and economic policy, scientific research, income generation and campaigning. She lives in Oxford and is Chair of Community Christmas, a small charity working to alleviate loneliness at Christmas.
Dr John Dean
Royal College of Physicians
John is a physician and Deputy Medical Director at East Lancashire Hospitals NHS Trust. He is a Trustee Councillor of the Royal College of Physicians (RCP) in addition to being their Clinical Director of Quality Improvement and Patient Safety. John has had a long interest in chronic disease management at a population level, and led a number of local, regional and national initiatives in this area. He has extensive Governance and Board experience within the NHS and arms-length bodies. He spent 12 months at the Institute for Healthcare Improvement (IHI) and Harvard University, and has worked in QI initiatives across the Department of Health, Royal Colleges, NHS NW, IHI and the Health Foundation. He played a major role in the development of the Advancing Quality Alliance (AQuA) as clinical lead, faculty and non-executive board member. John was appointed Clinical Lead for QI and Patient Safety at the Royal College of Physicians in 2017. He is an associate editor of Future Healthcare Journal. He is a member of a number of national working groups and boards for quality and patient safety. He is particularly interested to ensure clinical teams use high quality data to drive local quality improvement projects and programmes, and that they have the skills to do this. He is a Health Foundation/IHI fellow and Q fellow.
Dr Ian Arnott
I am a consultant gastroenterologist working at the Western General Hospital in Edinburgh. I trained in medicine at St Andrews and Manchester Universities. Post graduate training started in the North West of England at Manchester Royal Infirmary. Specialist training in gastroenterology was undertaken in South East Scotland and included a fellowship year at UCLA, Los Angeles, USA. I also complete a post graduate research thesis assessing prognostic aspects of inflammatory bowel disease and have published over 100 academic papers on various aspects of gastroenterology especially inflammatory bowel disease. I have a number of national roles including Chair of the IBD section of the British Society of Gastroenterology, IBD lead for the Scottish Governments Improving Patient Pathways Programme. I am also a physician adviser for the national charity Crohn’s and Colitis UK and am office bearer for the Scottish Governments Cross Party Group on Inflammatory Bowel disease. I am IBD lead for NHS Lothian and lead the quality improvement group. I also was clinical lead for the UK IBD Audit for 10 years. This was a UK wide audit programme funded by NHS England through the HQIP delivered national audit programme.
Prof Jack Satsangi
Jack Satsangi is the Lee Placito Professor of Gastroenterology, University of Oxford and an Honorary Consultant Physician in Oxford University Hospital NHS Trust. He qualified in Medicine from St Thomas’s Hospital Medical School, London in 1987; and he completed his postgraduate training in clinical and academic medicine in Oxford as an MRC Fellow and Clinician Scientist, working with Derek Jewell and John Bell .In 2000, Jack succeeded Professor Anne Ferguson as Professor of Gastroenterology in Edinburgh, with the intention of building on her legacy to develop a centre of excellence in inflammatory bowel disease. He returned to Oxford to take up his present post in 2018.
Jack has combined care of patients with Crohn’s disease and ulcerative colitis with basic, clinical and translational research. His areas of clinical interest have centred on complex and challenging IBD – and have included the management of severe colitis; the management of childhood-onset disease; the safety and efficacy of biological agents, and of novel therapeutic approaches; and the introduction of personalised medicine into clinical practice.
He has been involved in a number of important research advances including the discovery of cytokine dysregulation in IBD; the definition of the genetic architecture of inflammatory bowel disease; and investigation of gene-environmental interactions; disease epigenetics, and multi-omic analyses in biomarker discovery. He currently is Chief Investigator of the ICARUS – IBD consortium assessing Covid-19 impact in IBD.
Jack has been Secretary of the BSG IBD Committee, and was the first Chair of the BSG IBD Research Committee. He has led National and Regional NIHR Speciality Groups in Gastroenterology; as well as a co-ordinating a series of international research consortia supported by the European Community, and Helmsley Trust. He has supervised a series of research-active clinicians in UK and Europe. He is a Fellow of the Academy of Medical Sciences and of the Royal Society of Edinburgh.
Jack has been a Medical Advisor to CCUK for over 20 years; and has acted a Trustee or Committee member to CICRA and CORE/GUTS-UK. He has led a series of recent initiatives in increasing Patient and Public understanding of research.
Crohn’s & Colitis UK
Dr Joanne Fillingham, PhD, is a Speech and Language Therapist who qualified in 1998 and completed a PhD in 2005. Since then she has worked in clinical and leadership roles, across primary, community and secondary care settings at a local, regional and national level. She was the first to be appointed to the role of Clinical Fellow to the Chief Allied Health Professions (AHPs) Officer in NHS England and led the delivery of ‘AHPs into Action’ the national framework and strategy focusing on the role of AHPs in transforming health, care and wellbeing.
She joined NHS Improvement as the first Clinical Director for Allied Health Professions in December 2016 were, she provided expertise on how NHS Improvement can work to support trusts in service improvement and the professional development of AHPs.
In January 2020, Joanne was awarded an honorary degree of Doctor of the University from Birmingham City University in recognition of her outstanding contribution to Allied Health Professions. Joanne currently works for NHS England and NHS Improvement as the Deputy Chief Allied Health Professions Officer leading and influencing policy, supporting delivery and innovation, and driving quality improvement to deliver great care for our people and populations.
Joanne is also proud to be a trustee for Crohn’s and Colitis UK and the UK Irritable Bowel Disease Registry.
Our executive leadership team
Our executive leadership team balances business and clinical knowledge in a combination that allows us best to pursue our purpose.
Chief Executive Officer
Liz brings to the IBD Registry 20 years of executive and senior management experience from the private and not-for-profit sector, including early stage businesses. She brings both the leadership and business skills that the IBD Registry needs as a new non-profit company, combined with a robust background in operations, and technical understanding that will be of huge benefit to the Registry as it embarks on this next stage of its growth. Liz’s experience is underpinned by a Sloan Fellow MSc (Business) from London Business School, and BSc (Maths) first class honours.
Prof. Stuart Bloom
Stuart has been a consultant gastroenterologist at UCL Hospitals in London since 1996. He was chair of the IBD section of the British Society of Gastroenterology from 2006-2009 and is currently National Specialty Lead for Gastroenterology at the NIHR Comprehensive Clinical Research Network (NIHR-CCRN). He has a longstanding interest in how we use technology to record outcomes from the clinical consultation and in defining local and national populations of patients with Inflammatory bowel disease with a view to improving treatment and outcomes.
Dr Fraser Cummings
Clinical Lead for Studies & Collaboration
Fraser has been a consultant gastroenterologist at University Hospital Southampton (UHS) since 2009, having completed his clinical and research training in Oxford. As clinical lead for IBD services at UHS he is responsible for developing all aspects of the clinical service. Through this experience he has come to appreciate how critical accurate data is to the provision of high quality patient care as well as informing the development of new care pathways and local services. He is interested in how we record and use data to improve outcomes for patients.
Dr Keith Bodger
Keith has worked a consultant gastroenterologist in Liverpool since 2001 and is currently a Reader in the Department of Health Data Science at the University. He is a former member of the steering group for UK IBD Audit and chaired the inpatient experience sub-group. His research interests are focused on health outcomes and economics in gastroenterology, with a focus on finding better ways to use routinely collected health data to answer real-world questions and on the development of patient-reported outcome measures (PROMs). He developed the IBD-Control PROM which has been adopted as part of the International Consortium for Health Outcomes Measurement (ICHOM) Standard Set for IBD. Keith has a keen interest in promoting the integration of patient-reported outcomes into routine practice to promote better, more patient-focused care.
Dr Nick Kennedy
Clinical Technical Lead
Biography to follow
Funding for the IBD Registry has been provided by the British Society of Gastroenterology, Crohn’s and Colitis UK, AbbVie, Allergan, Biogen, Celltrion, Dr Falk, Janssen, MSD, Napp, Otsuka, Pfizer, Pharmacosmos, Shire, Takeda, Tillotts and Vifor as well as private donors. We would like to thank all of these organisations and individuals for their invaluable support.