Supporting Quality Standards across IBD
IBD Standards 2019
The IBD Registry is proud to be an integral partner of IBD UK which launched the updated IBD Standards in June 2019 at the BSG Meeting in Glasgow. The Standards define what quality care means for IBD patients and are the first update for six years.
The first IBD Standards were launched in 2009, after the first audit of IBD Services in 2006 by the Royal College of Physicians. This highlighted large variations in standards of care. The Standards were further updated in 2013 and are the foundation for the 2015 NICE quality standard on IBD.
The IBD Registry’s role
With its established IBD data collection network, the Registry has a special role to play in quality standards, providing the measuring and monitoring element in support of the defined standards. Our goal is to be able to provide as many standards-aligned data results as possible using our existing data collection processes, and so save clinical teams the burden of multiple data entry.
What are the Standards?
The IBD Standards are a framework of statements, created by IBD UK that define what should be put in place to deliver high-quality healthcare for people with Crohn’s and Colitis.
The IBD Standards say what high-quality care should look like at every point of the patient journey – from pre-diagnosis, newly diagnosed, flare management, surgery, inpatient care and ongoing care; as well as way that IBD service needs to be organised.
There are 59 statements that include:
- design and delivery of the multidisciplinary IBD service
- pre-diagnostic referral pathways
- holistic care of the newly diagnosed patient
- flare management to support patient empowerment
- self-management and access to specialists where required
- surgery including appropriate expertise
- pre-operative information
- psychological support and post-operative care
- inpatient medical care delivery;
- and ongoing long-term care in the outpatient department and primary care setting including shared care
You can download the IBD Standards core statements (PDF):
You can learn more about the IBD Standards at the IBDUK website www.ibduk.org
Clinical KPIs for IBD
The Registry has developed and maintains the KPIs for the National Audit of Biological Therapies (now part of Quality Accounts). These clinical KPIs have proven themselves in tracking the improvement in biologics treatment of patients, and we are now working with the BSG IBD section in reviewing an extension to these clinical KPIs, potentially to include capturing other key treatments such as steroid use in patients.
IBD Registry Ltd is a not-for-profit company limited by guarantee - Company Number 11197749.
Our Registered Address is 3 St Andrews Place, Regent’s Park, London NW1 4LB. VAT Number 291683766.