About the IBD Registry
Our purpose is to improve the health of people living with inflammatory bowel disease (IBD) in the UK.
We are the national registry for IBD, which includes Crohn’s disease, ulcerative colitis, IBD unclassified and other forms of IBD.
We collect and analyse patient data to help improve treatment and care for people with IBD. Our data can also be used to support vital research.
We are a not-for-profit organisation, owned by the British Society of Gastroenterology, the Royal College of Physicians and Crohn’s & Colitis UK. We were formed in 2012 by a group of consultant gastroenterologists (senior IBD doctors) to help provide a better picture of IBD in the UK. Now we have more than 100 hospitals sharing data with us, with a database of over 82,000 patient records. Find out more about who we are.
We have permission from the UK Government to receive patient data from NHS hospitals to help improve IBD treatment and care. If you have IBD, you can also join the IBD Registry to tell us that you are happy for your data to be collected in this way, and to choose whether you would also like your data to help support research into IBD.