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Richard Driscoll 1950-2017

It is with great regret and sadness that we have to inform you of the untimely passing of our friend and colleague Richard Driscoll. Richard passed away on the morning of Saturday 21st October, following a cardiac arrest last week. He is survived by his wife Aviva,...

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Patient Records Pass 30,000

This month the IBD Registry achieved two participation milestones: we moved past 30,000 patient records (up to 31,614) and now have 51 sites submitting data to the Registry.

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Quarterly Reports out this Month

The first quarterly reports will be sent to sites in October. Participating sites will receive a summary profile of the data they have submitted to the Registry in June 2017.

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We’re updating the drug dictionary

The IBD Registry are currently in the process of updating the core dataset, in particular we are updating and amending the list of medications in the drug dictionary…

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Registry Roadshow Wins Award

We’re absolutely delighted that the 2016 IBD Registry Roadshow has won the Communiqué Award for Excellence in Healthcare Collaboration and Partnerships. The Roadshow was a real team effort, with enormous commitment from the BSG, the Audit team at the RCP,...

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IBD Registry Symposium at BSG

A very successful session was held at the BSG Meeting with a broad Registry update from Fraser Cummings, a patient perspective from David Barker including a video message from Carrie Grant, an introduction to the new Data Visualisation charts on the...

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New Data Visualisation Tools for QI

A data visualisation tool has been developed to help IBD teams review their performance against key performance indicators for biological therapies. The tool is available initially for users of the IBD Registry Web Tool. The charts show local data...

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Converting your RCP Biologics Audit Data

NEW DATA VISUALISATION TOOLS FOR QUALITY IMPROVEMENT A data visualisation tool has been developed to help IBD teams track performance against key performance indicators for biologics. The tool has been developed for the Registry by CIMS as an add-on to...

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2017 Roadshow Announced

A series of half-day meetings to support clinical teams as they join the IBD Registry. The sessions provide protected time for teams to learn about the Biologics Audit and QI programme using the IBD Registry, and to develop local plans for Registry adoption. Each...

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January Headlines

The RCP audit now has closed so you need to export your data if you haven’t already done so. A data visualisation module for the Registry Web Tool will be piloted soon. NHS England has included the IBD Registry Biologics Audit on the Quality Accounts list for the coming year.

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We reached the end of 2016 with 60 sites actively participating in the IBD Registry, and over 21,000 patient records submitted. 80 sites in total have a ‘live’ system for data capture, and 21 additional sites are in the process of setting up so we expect...

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Latest IBD Registry data submission and site numbers

As we approach the end of the year, the Registry team would like to thank all the IBD teams who have now joined the project for all their hard work. We’ve reached an important milestone in November with 20 sites now having submitted data, giving a total...

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NEW: IBD Registry, patient consent and the National data opt-out - FINAL  (PDF 150KB)  

IBD Registry Patient information leaflet – April 2019Download here
IBD Registry Large Font/Accessible Patient information leaflet – April 2019Download here
IBD Registry Adult consent form – May 2018Download here
IBD Registry Paediatric consent form – May 2018Download here
IBD Registry A4 poster - May 2018Download here
IBD Registry patient consent guidance for hospitals (England and Wales) - August 2017Download here




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