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Newsletters

Winter 2020 public newsletter

Registry public newsletter for winter 2020 - published January 2020 Including: Registry tops 60,000 patient records Complement-ing clinical data with patient reported out-comes Realising quality improvement in IBD Listening to IBD nurses Taking stock over the decade...

Summer 2019 newsletter to clinical teams 2019

Registry news for IBD teams - Summer 2019 Including: News Zessly safety study opens for interest Webtool upgrade - down time 17th July BSG 2019 Glasgow - IBD Data and Quality Survey: why do you participate in the IBD Registry? IBD audit requirements Quality Accounts...

4 new posts available at the IBD Registry (we are growing!)

The IBD Registry is growing, and we are excited and pleased to be able to advertise for four new roles to support us in this growth.  These roles are opening for applications from Fri 14 August 2020.  We will be interviewing on a rolling basis, but expect to start...

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End of shielding in the UK nations

The UK governments have introduced a relaxation of shielding measures for high risk people, although you may be asked to shield again if there's an outbreak in your local area. The shielding scheme in England, Northern Ireland and Scotland paused from 31 July 2020,...

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July 2020 – now over 67,000 patient records

We are delighted to report that the Registry now holds a total of 67,870 records, following a marvellous submission effort from teams in July with an increase of 4,689 from 56 clinical teams – a remarkable achievement given the pressure on IBD services currently....

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For clinical teams: next submission is 10 July 2020

Important information for Registry-participating clinical teams: with the COVID-19 outbreak, to ease pressure on clinical teams we postponed the last (April) submission deadline. The next submission deadline is 10 July 2020 for data to the end of June, including all...

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Update on the COVID-19 UK IBD Tool for patients

Over 32,000 people in the UK with IBD have self-assessed their risk since launch on the 1 April 2020.  Between them, they have identified the 175 hospitals (Trusts and Health Boards) that provide them with care, and the data has been shared back to their doctors which...

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Abbreviated clinician news for IBD Teams – March 2020

Given the special circumstances putting pressure on IBD teams and wider health services, we have created some in-depth articles below in an easy to read format:  Switchers: Changing originator biologic to biosimilar Changing originator biologic to biosimilar With many...

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Registry surpasses 60,000 patient records

Huge congratulations to IBD clinical teams across the country - we have surpassed the 60,000 patient record mark. At time of writing we hold 63,181 records. 62 IBD teams submitted for this last quarter, 24% more than the same period last year. Figure: number of...

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