by Liz Dobson | Mar 21, 2023 | News, Patient
The IBD Registry has co-developed with our Patient Advisory Group (PAG) two new resources for people with inflammatory bowel disease (IBD). The resources include a leaflet and poster. They are available on our website to read online or download and print at home....
by Liz Dobson | Jun 11, 2021 | News, Patient
Unbelievably, it’s now 3 years since we set up IBD Registry Ltd as an independent not-for-profit organisation, following the original launch by the British Society of Gastroenterology (BSG) in June 2013. A birthday is a good time for reflection. We’re owned and...
by Liz Dobson | Jun 7, 2021 | Clinical, News, Newsletter, Patient
The PINPOINT study (the Prospective Incidence of Paediatric-Onset Inflammatory bowel disease in the United Kingdom) is undertaking a UK-wide incidence study of paediatric IBD. The number of children newly diagnosed with inflammatory bowel disease (IBD) each year has...
by Liz Dobson | May 3, 2021 | COVID-19, News, Patient
We are recruiting for two great roles in our Comms teams to help tell everyone how we use data to help patients, clinical teams and the NHS If you know someone who is passionate about helping people with IBD, and has the right background in communications to do so, do...
by Liz Dobson | Dec 31, 2020 | Clinical, COVID-19, Industry, News, Newsletter, Patient
Taking a much-needed few days rest at the end of a year that I think most of us didn’t see coming. Carefully laid annual plans went out of the window in March to be replaced by COVID-19 reactive planning. That included the COVID-19 IBD Risk Tool, our sleeper...
