Partnering for PINPOINT

Partnering for PINPOINT The PINPOINT study (the Prospective Incidence of Paediatric-Onset Inflammatory bowel disease in the United Kingdom) is undertaking a UK-wide incidence study of paediatric IBD. The number of children newly diagnosed with inflammatory bowel...

Submitting data to the IBD Registry – hints and tips for IBD teams

Submitting data to the IBD Registry – hints and tips for IBD teams To help IBD teams (to whom we are grateful for their time and work in submitting data) we have put together a page of hints and tips to make the process of submitting data easier. 1 Check your login...

2020: end of a long, strange year

2020: end of a long, strange year Taking a much-needed few days rest at the end of a year that I think most of us didn’t see coming. Carefully laid annual plans went out of the window in March to be replaced by COVID-19 reactive planning. That included the...

72,331 records – thank you wonderful IBD teams

72,331 records – thank you wonderful IBD teams We are delighted to report that the Registry now holds a total of 72,331 records, following a marvellous submission effort from teams in July with an increase of 4,461 from 57 clinical teams this quarter. A warm...

The Registry and COVID-19 – to listen to

The Registry and COVID-19 – to listen to We have two great resources for you to listen to learn more about the role that the Registry played in supporting clinical teams during the first wave of COVID-19 The role of patient-entered data in overcoming the...

July 2020 – now over 67,000 patient records

July 2020 – now over 67,000 patient records We are delighted to report that the Registry now holds a total of 67,870 records, following a marvellous submission effort from teams in July with an increase of 4,689 from 56 clinical teams – a remarkable achievement...