News
Going purple for IBD Awareness Week 2020
1-7 December 2020 was IBD/Crohn's & Colitis Awareness Week. As the IBD Registry, we work closely with Crohn's & Colitis UK in support of people with all forms of inflammatory bowel disease. We've taken the great work that Crohn's & Colitis do, and...
National Lockdown starts (England) on 05 November 2020
The government have announced a national lockdown for England, starting on Thursday 5th November 2020, which includes specific guidance for clinically vulnerable people in England. There are different rules for the four nations: the new national restrictions for...
Looking for a Digital Communications Officer
We have a big story to tell everyone, and we are looking for a Digital Communications Officer to help support our upcoming campaign to do just that. If you know someone who is digitally tech-savvy, skilled at campaign messaging, and can engage audiences with...
72,331 records – thank you wonderful IBD teams
We are delighted to report that the Registry now holds a total of 72,331 records, following a marvellous submission effort from teams in July with an increase of 4,461 from 57 clinical teams this quarter. A warm welcome aboard to James Paget University Hospital, West...
The Registry and COVID-19 – to listen to
We have two great resources for you to listen to learn more about the role that the Registry played in supporting clinical teams during the first wave of COVID-19 The role of patient-entered data in overcoming the COVID-19 information challenge In this educational...
4 new posts available at the IBD Registry (we are growing!)
The IBD Registry is growing, and we are excited and pleased to be able to advertise for four new roles to support us in this growth. These roles are opening for applications from Fri 14 August 2020. We will be interviewing on a rolling basis, but expect to start...
End of shielding in the UK nations
The UK governments have introduced a relaxation of shielding measures for high risk people, although you may be asked to shield again if there's an outbreak in your local area. The shielding scheme in England, Northern Ireland and Scotland paused from 31 July 2020,...
July 2020 – now over 67,000 patient records
We are delighted to report that the Registry now holds a total of 67,870 records, following a marvellous submission effort from teams in July with an increase of 4,689 from 56 clinical teams – a remarkable achievement given the pressure on IBD services currently....
Changes to “shielding” guidance in England and Northern Ireland
In response to “significantly falling” infection rates, the Government has announced changes to “shielding” guidance in England and Wales. The government has already eased restrictions in early July, in the lead up to a pause in the programme from the 1st August 2020,...
For clinical teams: next submission is 10 July 2020
Important information for Registry-participating clinical teams: with the COVID-19 outbreak, to ease pressure on clinical teams we postponed the last (April) submission deadline. The next submission deadline is 10 July 2020 for data to the end of June, including all...
Update on the COVID-19 UK IBD Tool for patients
Over 32,000 people in the UK with IBD have self-assessed their risk since launch on the 1 April 2020. Between them, they have identified the 175 hospitals (Trusts and Health Boards) that provide them with care, and the data has been shared back to their doctors which...
Abbreviated clinician news for IBD Teams – March 2020
Given the special circumstances putting pressure on IBD teams and wider health services, we have created some in-depth articles below in an easy to read format: Switchers: Changing originator biologic to biosimilar Changing originator biologic to biosimilar With many...