News
Data submission update for IBD clinical teams during the COVID-19 outbreak
With the COVID-19 outbreak and the resulting pressure on IBD clinical teams, the next IBD Registry data submission (planned beginning of April) has been relaxed, so that the next data submission dates will be 10 July followed by 9 Oct 2020. IBD clinical teams should...
Registry surpasses 60,000 patient records
Huge congratulations to IBD clinical teams across the country - we have surpassed the 60,000 patient record mark. At time of writing we hold 63,181 records. 62 IBD teams submitted for this last quarter, 24% more than the same period last year. Figure: number of...
PROMs: early benefits for care of IBD outpatients who directly report their symptoms via digital tablet
Pic: Pearl Avery, Clinical Nurse Specialist at Dorset County Hospital, by her clinical poster at ECCO2020, Vienna A UK nurse-led hospital team working with the IBD Registry has announced the success of an initiative to capture data reported directly by outpatients who...
IBD Registry reappointed as provider for IBD Quality Accounts for 2020-21
The Health Quality Improvement Partnership (HQIP) has confirmed the IBD Registry as the provider organisation for Quality Accounts for NHS Trusts providing Inflammatory Bowel Disease (IBD) services in England & Wales. HQIP, which runs the Quality Accounts scheme...
Deadline extended – IBD teams should complete ‘IBD Benchmarking’ self-assessments by 31st January 2020
As you may be aware, the IBD Registry is delighted to be working with 16 other organisations to transform IBD care and outcomes in the UK as part of IBD UK. IBD UK launched in 2019 the revised IBD Service Standards, the organisational element of the full Inflammatory...
Winter 2020 public newsletter
Registry public newsletter for winter 2020 - published January 2020 Including: Registry tops 60,000 patient records Complement-ing clinical data with patient reported out-comes Realising quality improvement in IBD Listening to IBD nurses Taking stock over the decade...
The IBD Registry – taking stock over the last decade
Taking stock As the IBD Registry approaches ten years since the concept of collecting real world information on the progress of people living with IBD, it is timely to look under the bonnet at the data collected so far. With over 60,000 records, the Registry is one...
Summer 2019 newsletter to clinical teams 2019
Registry news for IBD teams - Summer 2019 Including: News Zessly safety study opens for interest Webtool upgrade - down time 17th July BSG 2019 Glasgow - IBD Data and Quality Survey: why do you participate in the IBD Registry? IBD audit requirements Quality Accounts...
First Registry Annual Report on the Use of Biologics for Inflammatory Bowel Diseases
The IBD Registry has published its first Annual Report on the Use of Biologics for Inflammatory Bowel Diseases for the year 2018-19. The report includes the cumulative results to January 2019 from April 2016 when the Registry assumed the role of supporting the National Audit of Biological Therapies from the Royal College of Physicians.
IBD Registry key partner in the new HDR-funded data research hub for IBD research
A £5m grant has been awarded by Health Data Research UK (HDR UK) to establish a health data research hub for inflammatory bowel disease (IBD). The IBD hub, to be known as Gut Reaction – The Health Data Research Hub for Inflammatory Bowel Disease, will bring together...
Registry open for expressions of interest on new biosimilar pharmacovigilance study
The IBD Registry is inviting UK IBD clinical centres to participate in a post-marketing safety study of patients using Zessly (infliximab), a biosimilar available for the treatment of Inflammatory Bowel Disease (IBD). This study is facilitated by the Registry on...
Registry-based audit of biological therapies in IBD unveiled at BSG2019 meeting
The IBD Registry is delighted a presentation prepared by the Registry’s Analytics Hub at the University of Liverpool featured in the British Society of Gastroenterology Annual Meeting in Glasgow. The Audit of biological therapy for IBD - Shawihdi et al Poster BSG 2019...