Do you want to make a difference for people with inflammatory bowel disease ?


Join us – we are recruiting!

Click on the links below to find out more details for each of the following roles:

*Communications & Engagement Manager

April 2021: We will be recruiting this month for a Communications & Engagement Manager


Digital Communications Freelancers

For 2021: We are always looking for people with the right skills who share our passion to make a difference for people with IBD.  We see that will need occasional specialist digital skills in posters, infographics, advanced website design elements and  short edu-films. If you have a background and understanding of health communications, one of these skills and are looking for freelance work please be in touch with us


* Data & Analytics Manager

We will also be recruiting for a Data & Analytics Manager – coming soon

Why join us ?

The IBD Registry is the first and largest repository of UK IBD (inflammatory bowel disease) data, and is just beginning its next phase of growth.  There are approx. 500,000 people in the UK with IBD, a chronic disease which can be debilitating, difficult to manage and is still not well understood. Our mission is to provide better understanding based on data, to improve care of and treatments for patients, better information for clinicians and other stakeholders, with the aim throughout of improving outcomes for patients.  Although we are a small organisation we play a big role in improving people’s lives.  We work directly with hospitals, doctors and nurses across the UK; with drug studies, with the NHS, as well as with key Universities in the fields of biostatistics and data analytics.  We are deeply involved in the fast-moving and exciting area of health data, and the technologies that underpin and transform that data.

In pursuit of our mission we have recently partnered with Cambridge University Hospitals and the University of Cambridge on a 3 year/£5million programme to link and make accessible diverse datasets in a Hub for researchers.  This project will involve the FHIR transformation of our existing dataset and linkage of it with the Bioresource IBD dataset and also with the key NHS HES and electronic Prescribing datasets. This is a national project very much at the leading edge, looking to transform the landscape for researchers and the data they need for their work.

We hope to hear from you soon if you think we have a role for you here at the IBD Registry.

Our recruitment process

During the COVID-19 restrictions, our interviews will be by Teams video call.  Additionally, the successful applicant will be fully supported to work from home for the initial period where restrictions on non-essential travel are in place.

There is no fixed closing date for this role.  We want to appoint quickly, and we will be shortlisting and inviting to interview on a rolling weekly basis by the end of each week (Fridays).  We will close the process when we have appointed a candidate.  Our interview process will involve a combination of two Teams video calls and 2-3 practical relevant tasks done offline, to allow you to demonstrate your ability in relevant key areas. This also aligns with how we work, which is very focused on end results.

Contact us and more information

If you would like to know more about working with us to make a difference to the lives of people with IBD, contact Katie Gray, our Finance & Busines Manager



IBD Registry Ltd is a not-for-profit company limited by guarantee - Company Number 11197749.
Our Registered Address is 3 St Andrews Place, Regent’s Park, London NW1 4LB. VAT Number 291683766.