Consent and patient information
Consent and patient information materials
NEW: A National Data Opt-Out is being introduced from March 2020 to enable patients to opt out from the use of their data for research or planning purposes. IBD Teams submitting data to the Registry should read our new guidance on what this means to ensure compliance with patient data preferences.
IBD Registry Patient information leaflet – April 2019 | Download here |
IBD Registry Large Font/Accessible Patient information leaflet – April 2019 | Download here |
IBD Registry Adult consent form – May 2018 | Download here |
IBD Registry Paediatric consent form – May 2018 | Download here |
IBD Registry A4 poster - May 2018 | Download here |
IBD Registry patient consent guidance for hospitals (England and Wales) - August 2017 | Download here |
IBD Registry Ltd is a not-for-profit company limited by guarantee - Company Number 11197749.
Our Registered Address is 3 St Andrews Place, Regent’s Park, London NW1 4LB. VAT Number 291683766.