Consent and Patient Information Materials
GDPR-ready materials available below. Please be advised the changes are for GDPR compliance only. A through review of the materials will happen in 2018. You will be informed when these are available.
| IBD Registry patient information leaflet – May 2018 | Download here |
| IBD Registry consent form – May 2018 | Download here |
| IBD Registry consent form for children – May 2018 | Download here |
| IBD Registry A4 poster - May 2018 | Download here |
| IBD Registry patient consent guidance for hospitals (England and Wales) - August 2017 | Download here |
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Latest News
Could your IBD service improve?
Continuing its mission to improve the care that people with IBD receive, the Royal College of Physicians is offering IBD teams an opportunity to participate in a new quality improvement collaborative, consisting of three 1-day learning sessions and supported action...
read moreIBD Registry has a new home
Following the establishment of IBD Registry Limited as an independent not-for-profit company, we have moved offices to: The IBD Registry The Ebbisham Centre 6-7 Derby Square EPSOM KT18 8AG Telephone (unchanged): 020 393 3969 Contact (unchanged):...
read moreWe’re at BSG 2018
If you’re coming to the BSG Annual Meeting in Liverpool next week, do come and say hello to us – we’re at stand B58 in the exhibition.
read moreIBD Registry’s GDPR special addition
As we’re sure you know, the General Data Protection Regulation (GDPR) comes into force on 25th May.
This newsletter is to let you know what’s changed at the IBD Registry to be compliant with the new regulations.
read moreA warm hello from Liz, our new CEO
I have been on board as the CEO of the IBD Registry for just two weeks now, but it has only taken that short time to get a real sense of the goodwill that people have for the Registry, as well as the dedication of the clinical teams in entering data, and the hopes and...
read more