The UK IBD Registry

The UK IBD Registry

The IBD Registry is the vehicle for the biologics audit and quality improvement programme. Teams can participate using a choice of data entry systems including existing local systems. Being part of the Registry will give teams:

  • Local data to manage their biologics patients and IBD service more effectively
  • The chance to be part of a national audit of the safety and appropriate use of biologics and biosimilars

The Registry has the potential to become a unique resource for real-world clinical effectiveness and health economic studies in IBD care. While data can be collected on all IBD treatments, the focus for 2016/17 is on biologics. The aims are to:

  • Transfer data collection to the IBD Registry from the RCP biological therapy audit web tool, which has now closed
  • Develop a near-complete UK Register of IBD patients on biologics by the end of 2017

Find out more about…

HOW TO JOIN DATA ENTRY OPTIONS

Making-Information-Work

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IBD July Update

IBD REGISTRY SYMPOSIUM AT BSG IN MANCHESTER A very successful session was held at the BSG Meeting with a broad Registry update from Fraser Cummings, a patient perspective from David Barker including a video message from Carrie Grant, an introduction

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IBD June Update

IBD REGISTRY SYMPOSIUM AT BSG IN MANCHESTER Join us in Manchester on Wednesday 21st June at 4.30-6pm for the first presentation of the biologics KPIs, as well as the latest news on research projects using the Registry. Chaired by Stuart

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BSG May 2017 Update

NEW DATA VISUALISATION TOOLS FOR QUALITY IMPROVEMENT A data visualisation tool has been developed to help IBD teams track performance against key performance indicators for biologics. The tool has been developed for the Registry by CIMS as an add-on to

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Audit & Registry – where next?

The UK IBD Registry:
an introduction

Driving excellence with the IBD Registry

Dr Barney Hawthorne on IBD Registry as an opportunity for UK to be world-leading

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