UK IBD Registry
Being part of the IBD Registry will give teams:
- Local data to manage their biologics patients and IBD service more effectively
- The chance to be part of a national audit of the safety and appropriate use of biologics and biosimilars
In time the Registry will become a unique resource for real-world clinical effectiveness and health economic studies in IBD care. The goals for 2016/17 are:
- Transfer data collection to the IBD Registry from the RCP biological therapy audit web tool, which will be closing
- Develop a near-complete UK Register of IBD patients on biologics by the end of 2017
Find out more about…
The RCP audit now has closed so you need to export your data if you haven’t already done so. A data visualisation module for the Registry Web Tool will be piloted soon. NHS England has included the IBD Registry Biologics Audit on the Quality Accounts list for the coming year.
We reached the end of 2016 with 60 sites actively participating in the IBD Registry, and over 21,000 patient records submitted. 80 sites in total have a ‘live’ system for data capture, and 21 additional sites are in the process…
As we approach the end of the year, the Registry team would like to thank all the IBD teams who have now joined the project for all their hard work. We’ve reached an important milestone in November with 20 sites…
Audit & Registry – where next?
The UK IBD Registry:
Driving excellence with the IBD Registry
Dr Barney Hawthorne on IBD Registry as an opportunity for UK to be world-leading