The UK IBD Registry

Making-Information-Work

IBD Registry

The IBD Registry is developing the infrastructure to capture pseudonymised IBD patient data from across the UK and link it with routinely collected NHS hospital statistics. Bringing this data together for the first time will:

  • Drive continuous improvement in patient care and access to care across the UK
  • Inform commissioning and service design
  • Improve our understanding of long term outcomes
  • Provide local, regional & national data in order to better define the pattern of ulcerative colitis and Crohn’s disease
  • Support IBD research

 

The Registry is also becoming the vehicle for ongoing data capture for audit and quality improvement in the UK.

 

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Driving excellence with the IBD Registry

Dr Barney Hawthorne on IBD Registry as an opportunity for UK to be world-leading


The UK IBD Registry:
an introduction

Join us at the BSG in June!

Join Stuart Bloom, Ian Arnott, Pearl Avery, Keith Bodger and Fraser Cummings at the BSG meeting in Liverpool next month. Delivering Quality with the IBD Registry will give you a chance to find out more about IBD Audit and IBD

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Regional Meetings and Next Steps

Most of you who came to a regional meeting have written a local plan focusing on the next steps you need to take to join the Registry. We hope you’ve been able to put your plan into action, but if

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Latest data submission March 2016

We now have information from 11 hospitals on 12,246 IBD patients (up from 8 hospitals and 8,037 IBD patients last quarter). 3 additional teams have registered with HSCIC, so are ready to contribute their data next time. We’re making steady

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