The UK IBD Registry

UK IBD Registry

The IBD Registry is now the vehicle for the biologics audit and quality improvement programme. Teams can participate using a choice of data entry systems including existing local systems. Being part of the IBD Registry will give teams:
  • Local data to manage their biologics patients and IBD service more effectively
  • The chance to be part of a national audit of the safety and appropriate use of biologics and biosimilars

In time the Registry will become a unique resource for real-world clinical effectiveness and health economic studies in IBD care. The aims for 2016/17 are:

  • Transfer data collection to the IBD Registry from the RCP biological therapy audit web tool, which will be closing
  • Develop a near-complete UK Register of IBD patients on biologics by the end of 2017

Find out more about…

HOW TO JOIN DATA ENTRY OPTIONS

Making-Information-Work

Join our mailing list

IBD REGISTRY 2017 ROADSHOW DATES ANNOUNCED

A series of half-day meetings to support clinical teams as they join the IBD Registry. The sessions provide protected time for teams to learn about the Biologics Audit and QI programme using the IBD Registry, and to develop local plans

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January Headlines

The RCP audit now has closed so you need to export your data if you haven’t already done so. A data visualisation module for the Registry Web Tool will be piloted soon. NHS England has included the IBD Registry Biologics Audit on the Quality Accounts list for the coming year.

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UK IBD REGISTRY ENDS YEAR ON A HIGH NOTE

We reached the end of 2016 with 60 sites actively participating in the IBD Registry, and over 21,000 patient records submitted. 80 sites in total have a ‘live’ system for data capture, and 21 additional sites are in the process

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Audit & Registry – where next?

The UK IBD Registry:
an introduction

Driving excellence with the IBD Registry

Dr Barney Hawthorne on IBD Registry as an opportunity for UK to be world-leading

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