The UK IBD Registry

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The UK IDB Registry:
an introduction

A reminder about consent

From May 2016 all patients in the Registry will need to be consented; there are four separate consent questions and our experience so far suggests patients tend to consent to all. Informed consent for Registry. This allows personal demographic and

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Successful data upload

Participating hospitals have just completed the latest upload of their IBD data to the Health and Social Care Information Centre (HSCIC) and the Registry now has data from 8 hospitals (6 using the Registry PMS, 1 using web tool and

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Local benefits – the Dorset experience

Clinical Nurse Specialist Pearl Avery reports on how being part of the IBD Registry is helping the Dorset IBD team provide a better service to patients. Responding to patients The patient management system is giving us the ability to respond

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