by George Zeng | Feb 15, 2024 | Uncategorized
Following the recent announcement of the IBD Registry Closure we are pleased to confirm that the Royal College of Physicians (RCP) has agreed to act as interim steward for safeguarding the data. This means that our data assets, including personal data, will be...
by Liz Dobson | May 15, 2023 | News, Uncategorized
World IBD Day on 19 May provides an opportunity to bring more awareness to Inflammatory Bowel Disease (IBD). Inflammatory bowel diseases are long-term conditions, so collecting information about how people are affected over time is important to help improve treatment...
by Liz Dobson | Dec 19, 2022 | Uncategorized
The past year has seen huge change at the IBD Registry, and as 2022 draws to a close, we are grateful for all the support we have received from people with inflammatory bowel disease (IBD) and the clinical teams that care for them. This year has seen great progress in...
by Liz Dobson | Nov 3, 2022 | News, Uncategorized
The IBD Registry has published its annual report on the use of biological therapies in the treatment of inflammatory bowel disease (IBD), as it prepares for the expansion of the national audit into other vital aspects of patient care in 2023. We have seen further...
by Liz Dobson | Jul 5, 2022 | Uncategorized
Early findings from a new IBD Registry study reveal that 1 in 10 people with IBD would never want a remote appointment, despite virtual appointments becoming more routine. The new study was presented by Dr Keith Bodger, IBD Registry Academic Lead, at the annual...
by Liz Dobson | Mar 17, 2022 | Uncategorized
The Health Research Authority Research Ethics Service (RES) has approved the IBD Registry’s data collection and consent process, making research applications to access our data simpler, quicker and more cost-effective. People with inflammatory bowel disease (IBD) can...
