As we approach the end of the year, the Registry team would like to thank all the IBD teams who have now joined the project for all their hard work. We’ve reached an important milestone in November with 20 sites now having submitted data, giving a total of 17,328...

We are asking all sites that have any patient data live on a Registry-compatible system to upload their patient data to NHS Digital (HSCIC) during November. This is really important as the BSG Trustees will be assessing BSG support for the Registry/Audit in 2017 when...

The report suggests that biosimilars are safe and effective for IBD patients and if adopted can reduce the cost of treatment by half. This is the final report produced by  the UK IBD audit at the Royal College of Physicians. Data collection to support audit and...

With the launch of the IBD Registry web tool last month, we’re all set for every IBD team in the UK to join in, and to start to benefit from collecting useful local data to help deliver better patient care and support service development. Here Pearl Avery describes...

We’re delighted to announce that the web tool is now live, and the first sites are currently on track to be entering data by mid-August. We have secured the necessary permissions for hospitals in the devolved nations to access the Registry Web Tool through the N3...

Join Stuart Bloom, Ian Arnott, Pearl Avery, Keith Bodger and Fraser Cummings at the BSG meeting in Liverpool next month. Delivering Quality with the IBD Registry will give you a chance to find out more about IBD Audit and IBD Registry plans as the Registry takes over...

Most of you who came to a regional meeting have written a local plan focusing on the next steps you need to take to join the Registry. We hope you've been able to put your plan into action, but if you have come up against any barriers that you think the Registry team...

We now have information from 11 hospitals on 12,246 IBD patients (up from 8 hospitals and 8,037 IBD patients last quarter). 3 additional teams have registered with HSCIC, so are ready to contribute their data next time. We’re making steady progress with participation...

The new post of Data Manager has been created to be responsible for maintaining and updating the central database systems within the IBD Registry IT infrastructure. This will involve set up of new hospital and user registrations, user helpline enquiries and configuring the databases and reports. Training in the InfoFlex software will be provided.

Participating hospitals have just completed the latest upload of their IBD data to the Health and Social Care Information Centre (HSCIC) and the Registry now has data from 8 hospitals (6 using the Registry PMS, 1 using web tool and 1 sending data from their own...