Data Access Portal
If you have recently signed up to our new Data Access Portal, or are about to do so, we have produced a short video guide that IBD teams can use anytime to remind yourself of the data submission process, or alternatively you can download our short guide to uploading data. We also have further guidance on preparing your files to comply with the national data opt-out.
IBD Registry and biologics audit data submission deadlines:
All data submissions are suspended indefinitely.
The IBD Registry dataset
The IBD Registry is designed to be systems-agnostic. It doesn’t require any dedicated tool (you don’t have to have our WebTool) and it can work with any clinical system. We do this by having an IBD Registry dataset that your system can work with.
The level of data you can provide depends on your clinical system and the way your clinics run. We often worked directly with clinical teams and IT teams to find the level that fits best with clinical processes.
You can download a summary list of our national IBD data items here.