The campaign is Reshaping the Registry (or Registry 2.0). Over the past 6 months (as well as dealing with IBD data to support clinical teams in COVID-19 times), the Registry has been majorly reshaping itself behind the scenes to have the infrastructure, tools and skills in place to be the data and analytics engine for the IBD community – this will enable us to deliver a revolutionary better way of doing clinical audit and service evaluation for IBD teams, to provide fast and relevant data insights into the changing landscape of IBD, treatments and care and to support people with IBD with the insights they need to better understand and personally care for their disease.
The Royal College of Physicians to Act as Interim Steward for Safeguarding the IBD Registry Data
Following the recent announcement of the IBD Registry Closure we are pleased...