Partnering

Studies

The IBD Registry welcomes collaboration. Besides working with IBD teams in the NHS, the IBD Registry collaborates with a variety of partner organisations active in the IBD space. We are keen to work with clinicians on clinical studies.

If you are a member of an IBD clinical team and would like to discuss a potential clinical study in IBD, we would be pleased to discuss further.

We are also able to help with industry studies and can advise on how we can help within the parameters of our governance process.  

Gut Reaction – The Health Data Research Hub for Inflammatory Bowel Disease

The IBD Registry is a founder member of Gut Reaction, one of seven hubs set up across the UK to speed up research for new medicines and treatments, support quicker diagnoses and potentially save lives.  Our partners include academia, healthcare professional bodies, patient groups and industry.

More information here.

Industry

We are also able to help with industry studies and can advise on how we can help within the parameters of our governance process.  

More information on our Industry Working Group

More information on our industry supporters

Apps and Systems

The IBD Registry has partnered with clinical systems providers to ‘build in’ Registry data compliance for the IBD clinical teams, saving them time and effort in data capture.  We are always seeking to make clinical lives easier, and so are very open to hearing from patients apps or clinical system providers who are interested in doing the same with their system

More information here.