72,331 records – thank you wonderful IBD teams

We are delighted to report that the Registry now holds a total of 72,331 records, following a marvellous submission effort from teams in July with an increase of 4,461 from 57 clinical teams this quarter. A warm welcome aboard to James Paget University Hospital, West Suffolk, Warrington & Halton, Worcestershire and St Helier. Now we start work on the analyses for our next quarterly report for IBD teams – due out in December 2020.

The next submission deadline is Friday 8 January 2021.

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Latest News

2020: end of a long, strange year

Taking a much-needed few days rest at the end of a year that I think most of us didn't see coming. Carefully laid annual plans went out of the window in March to be replaced by COVID-19 reactive planning. That included the COVID-19 IBD Risk Tool, our sleeper surprise...

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Going purple for IBD Awareness Week 2020

1-7 December 2020 was IBD/Crohn's & Colitis Awareness Week. As the IBD Registry, we work closely with Crohn's & Colitis UK in support of people with all forms of inflammatory bowel disease.  We've taken the great work that Crohn's & Colitis do, and...

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National Lockdown starts (England) on 05 November 2020

The government have announced a national lockdown for England, starting on Thursday 5th November 2020, which includes specific guidance for clinically vulnerable people in England.   There are different rules for the four nations: the new national restrictions for...

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Looking for a Digital Communications Officer

We have a big story to tell everyone, and we are looking for a Digital Communications Officer to help support our upcoming campaign to do just that.   If you know someone who is digitally tech-savvy, skilled at campaign messaging, and can engage audiences with...

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The Registry and COVID-19 – to listen to

We have two great resources for you to listen to learn more about the role that the Registry played in supporting clinical teams during the first wave of COVID-19 The role of patient-entered data in overcoming the COVID-19 information challenge In this educational...

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