Winter 2020 public newsletter
Registry public newsletter for winter 2020 – published January 2020
- Registry tops 60,000 patient records
- Complement-ing clinical data with patient reported out-comes
- Realising quality improvement in IBD
- Listening to IBD nurses
- Taking stock over the decade
- We love feedback – tell us what you think of the annual report
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Given the special circumstances putting pressure on IBD teams and wider health services, we have created some in-depth articles below in an easy to read format: Switchers: Changing originator biologic to biosimilar Changing originator biologic to biosimilar With many...
With the COVID-19 outbreak and the resulting pressure on IBD clinical teams, the next IBD Registry data submission (planned beginning of April) has been relaxed, so that the next data submission dates will be 10 July followed by 9 Oct 2020. IBD clinical teams should...
Huge congratulations to IBD clinical teams across the country - we have surpassed the 60,000 patient record mark. At time of writing we hold 63,181 records. 62 IBD teams submitted for this last quarter, 24% more than the same period last year. Figure: number of...
PROMs: early benefits for care of IBD outpatients who directly report their symptoms via digital tablet
Pic: Pearl Avery, Clinical Nurse Specialist at Dorset County Hospital, by her clinical poster at ECCO2020, Vienna A UK nurse-led hospital team working with the IBD Registry has announced the success of an initiative to capture data reported directly by outpatients who...
The Health Quality Improvement Partnership (HQIP) has confirmed the IBD Registry as the provider organisation for Quality Accounts for NHS Trusts providing Inflammatory Bowel Disease (IBD) services in England & Wales. HQIP, which runs the Quality Accounts scheme...