Winter 2020 public newsletter

Registry public newsletter for winter 2020 – published January 2020


  • Registry tops 60,000 patient records
  • Complement-ing clinical data with patient reported out-comes
  • Realising quality improvement in IBD
  • Listening to IBD nurses
  • Taking stock over the decade
  • We love feedback – tell us what you think of the annual report

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The IBD Registry – taking stock over the last decade

Taking stock  As the IBD Registry approaches ten years since the concept of collecting real world information on the progress of people living with IBD, it is timely to look under the bonnet at the data collected so far. With over 60,000 records, the Registry is one...

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