Winter 2020 public newsletter
Registry public newsletter for winter 2020 – published January 2020
- Registry tops 60,000 patient records
- Complement-ing clinical data with patient reported out-comes
- Realising quality improvement in IBD
- Listening to IBD nurses
- Taking stock over the decade
- We love feedback – tell us what you think of the annual report
Find out more about:
The Health Quality Improvement Partnership (HQIP) has confirmed the IBD Registry as the provider organisation for Quality Accounts for NHS Trusts providing Inflammatory Bowel Disease (IBD) services in England & Wales. HQIP, which runs the Quality Accounts scheme...
Deadline extended – IBD teams should complete ‘IBD Benchmarking’ self-assessments by 31st January 2020
As you may be aware, the IBD Registry is delighted to be working with 16 other organisations to transform IBD care and outcomes in the UK as part of IBD UK. IBD UK launched in 2019 the revised IBD Service Standards, the organisational element of the full Inflammatory...
Taking stock As the IBD Registry approaches ten years since the concept of collecting real world information on the progress of people living with IBD, it is timely to look under the bonnet at the data collected so far. With over 60,000 records, the Registry is one...
In pursuit of our mission we have recently partnered with Cambridge University Hospitals and the University of Cambridge on a 3 year/£5million programme to link and make accessible diverse datasets in a Hub for researchers. This project will involve the FHIR...
The IBD Registry has published its first Annual Report on the Use of Biologics for Inflammatory Bowel Diseases for the year 2018-19. The report includes the cumulative results to January 2019 from April 2016 when the Registry assumed the role of supporting the National Audit of Biological Therapies from the Royal College of Physicians.