Liz Dobson appointed as CEO

First IBD Registry CEO appointed

The IBD Registry Board is delighted to announce the appointment of Liz Dobson as the first Chief Executive Officer of IBD Registry Ltd from 16th April 2018.

Liz brings to the IBD Registry 20 years of executive and senior management experience from the private and not-for-profit sector, including early stage businesses. She brings both the leadership and business skills that the IBD Registry needs as a new non-profit company, combined with a robust background in operations, and technical understanding that will be of huge benefit to the Registry as it embarks on this next stage of its growth.  Liz’s experience is underpinned by a Sloan Fellow MSc (Business) from London Business School, and BSc (Maths) first class honours.

Amanda Quincey, current Chair* of the IBD Registry Board commented, “the Board are delighted to welcome Liz Dobson to the team. She joins us with excellent experience and shares our ambitions for an exciting future for the Registry.  We have recently faced some challenging times as we have been transitioning into our new form, and we thank all our stakeholders, especially clinical teams, for their continued support and patience during that period.” READ MORE…

For more information, please contact [email protected]

*The role of chair of the Board will rotate every six months.

Data and reporting

Quality Accounts in England

The IBD Registry’s Biologics Audit is included in NHS England’s Quality Accounts for 2018/19. The focus of the audit remains the same as last year, aiming to collect data on all patients who received biological therapy at any time during the year. Data is requested at three time points: initiation, post-induction review and 12-month review. For a more complete review of the KPIs visit the IBD Registry website: https://ibdregistry.org.uk/wp-content/uploads/2016/12/IBD-Registry-Biologics-KPIs-2016-17-Dec-2016.pdf

If you have any questions regarding the Biologics Audit for 2018/19 please contact [email protected]

IBD Biologics Audit data submission deadlines

IMPORTANT ANNOUNCEMENT: the deadline for the final 2017/18 IBD biologics audit data submission has been extended to Friday 13th April. Please contact [email protected] if you need any assistance.

The data submission deadlines for the IBD Biologics Audit during 2018 and 2019.

Information for sites

BSG symposium – save the date

The IBD Section Symposium at the BSG annual meeting will take place on Wed 6th June, 09:00-10:30, in Hall 3a at the ACC in Liverpool. The symposium will include a tribute to Richard Driscoll as well as updates on the IBD Registry’s progress and plans.

Calling all Ferring database users – deadline approaching

As many of you are aware, the development of the UK IBD Registry, with its own data entry systems, has prompted a re-evaluation of Ferring’s involvement in the provision of the IBD Database as it effectively duplicates those provided by the Registry. Ferring have decided therefore to redirect their resources and will end their sponsorship of the IBD Database from 30th June 2018.

To facilitate the transfer of data, Ferring have invested, in conjunction with North Bristol NHS Trust, in the development of Version 4. This will allow data to be uploaded to the IBD Registry (via NHS Digital), and is available to all current users of the Ferring Database. Ferring are pleased to be able to offer support to upgrade to Version 4 up to the end of June 2018.

To move to Version 4 and enable migration of your data into the UK IBD Registry, please contact Bryan Archer on 07818 027477 or [email protected]

Other news

GI/ IBD Nurse of the Year

The British Journal of Nursing Gastrointestinal/IBD Nurse of the Year award was awarded to Pearl Avery last month. Pearl’s use of local data collected using the IBD Registry PMS has made a big impact, enabling her to increase the CNS staff.  She commented: “I am honoured but still rather overwhelmed. Ultimately, I want to make this work for my local patients and continue to show how valuable IBD nurses are to those patients …it is wonderful to be recognised for work that you absolutely love and a national award like this is incredible. I am aware I am only as good as the team around me and I feel this is as much their award as it is mine.”

Richard Driscoll’s Memorial

On the 19th March 2018 the IBD Registry, HQIP and Crohn’s and Colitis UK held a memorial for Richard Driscoll at the Royal College of Physicians, reflecting on his contribution to improving the care of IBD patients throughout his long career. Crohn’s and Colitis UK announced a new research fellowship in Richard’s memory. The fellowship aims to help junior medics with an interest in IBD to develop into outstanding clinicians and future leaders in the field.

Newsletter consent

Do you still want to be on this mailing list?

On the 25th May 2018, the General Data Protection Regulation (GDPR) will bring in new data privacy measures. To be compliant, we’ll need your written consent to hold your email address. If you want to receive future communications from the IBD Registry team, please click this link and press send. Alternatively copy the text below and send to [email protected]

“I wish to continue receiving updates from the IBD Registry.”

If you’ve already sent an email you don’t need to do anything. If you don’t respond before the 25th May 2018 we’ll have to take you off our contact database to ensure our compliance with the new GDPR. Please note, this is just for the monthly newsletter.

With our thanks for your continued contribution to the IBD Registry,

Dr Stuart Bloom,

IBD Registry Chair

Dr Fraser Cummings,

IBD Registry Clinical Lead

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