2017 has been a pivotal year in the development of the IBD Registry. Continued hard work from IBD teams across the country has resulted in 33,321 patient records being uploaded by 53 sites.
Thanks to an idea from our Industry Working Group, we set up a data entry fund, and supported 23 sites with a grant of £2,000 to cover additional hours. This initiative has been well received, and has enabled teams to improve their performance against the biologics KPIs.
Data visualisation tools, developed with the RCP’s clinical effectiveness unit, were launched in the summer. The tool uses real-time run charts to allow teams to compare their performance against national results.
In May and June, the IBD Registry Roadshow visited 6 locations and was attended by 120 clinicians from 62 hospitals. The effectiveness of this approach was recognised in July, when the 2016 Roadshow won the Communiqué award for Excellence in Healthcare Collaboration and Partnership; later in the year it also received a high commendation at the PMEA awards.
Keith Bodger and Mustafa Shawihdi at Liverpool University have produced the first quarterly reports to support sites in their quality improvement work, and the first HES reports are due to be released shortly.
November saw the launch of our Field Support Programme: field based industry personnel are already working with 11 IBD teams to address local barriers.
Sadly, 2017 was also the year in which we lost our friend and colleague, IBD Registry Development Lead Richard Driscoll. Richard’s positive impact on the lives of people with IBD was enormous, and will continue to be felt for years to come. We plan to commemorate Richard at next year’s BSG annual meeting.
Looking forward to 2018
In 2018, the Registry aims to become an independent not-for-profit organisation, with the support of the BSG, Crohn’s and Colitis UK and the Royal College of Physicians. The Registry’s main focus remains on delivering useful local data that helps IBD teams to provide better care to their patients.
Data submission deadline
To avoid the holiday period, we moved the December data submission deadline to Friday 26th January 2018. If you need any support please don’t hesitate to contact the IBD Registry team at [email protected].
HC-UK: The Clinical Audit Summit 2018: Clinical Audit for Improvement
On the 5th March 2018 HC-UK will be hosting The Clinical Audit Summit 2018: Clinical Audit for Improvement which is being supported by HQIP and NQICAN. To view a document that contains all the relevant information and a sign up form at the bottom click here.
With our thanks for your continued contribution to the IBD Registry,
Dr Stuart Bloom, IBD Registry Chair
Dr Fraser Cummings, IBD Registry Clinical Lead
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Data and reporting Milestone HES reports sent to sites this week Earlier this week, HES reports were sent to all Registry sites that have submitted data to NHS Digital, fulfilling a long-held Registry aim to make information work better for patients, clinical teams...read more
The IBD Registry team have realised a long-held ambition to use routinely collected hospital episode statistics (HES) data to supplement the clinical data collected by sites, in a ground-breaking initiative led by Keith Bodgerread more
It is with great regret and sadness that we have to inform you of the untimely passing of our friend and colleague Richard Driscoll. Richard passed away on the morning of Saturday 21st October, following a cardiac arrest last week. He is survived by his wife Aviva,...read more
This month the IBD Registry achieved two participation milestones: we moved past 30,000 patient records (up to 31,614) and now have 51 sites submitting data to the Registry.read more
The first quarterly reports will be sent to sites in October. Participating sites will receive a summary profile of the data they have submitted to the Registry in June 2017.read more