2017 has been a pivotal year in the development of the IBD Registry. Continued hard work from IBD teams across the country has resulted in 33,321 patient records being uploaded by 53 sites.
Thanks to an idea from our Industry Working Group, we set up a data entry fund, and supported 23 sites with a grant of £2,000 to cover additional hours. This initiative has been well received, and has enabled teams to improve their performance against the biologics KPIs.
Data visualisation tools, developed with the RCP’s clinical effectiveness unit, were launched in the summer. The tool uses real-time run charts to allow teams to compare their performance against national results.
In May and June, the IBD Registry Roadshow visited 6 locations and was attended by 120 clinicians from 62 hospitals. The effectiveness of this approach was recognised in July, when the 2016 Roadshow won the Communiqué award for Excellence in Healthcare Collaboration and Partnership; later in the year it also received a high commendation at the PMEA awards.
Keith Bodger and Mustafa Shawihdi at Liverpool University have produced the first quarterly reports to support sites in their quality improvement work, and the first HES reports are due to be released shortly.
November saw the launch of our Field Support Programme: field based industry personnel are already working with 11 IBD teams to address local barriers.
Sadly, 2017 was also the year in which we lost our friend and colleague, IBD Registry Development Lead Richard Driscoll. Richard’s positive impact on the lives of people with IBD was enormous, and will continue to be felt for years to come. We plan to commemorate Richard at next year’s BSG annual meeting.
Looking forward to 2018
In 2018, the Registry aims to become an independent not-for-profit organisation, with the support of the BSG, Crohn’s and Colitis UK and the Royal College of Physicians. The Registry’s main focus remains on delivering useful local data that helps IBD teams to provide better care to their patients.
Data submission deadline
To avoid the holiday period, we moved the December data submission deadline to Friday 26th January 2018. If you need any support please don’t hesitate to contact the IBD Registry team at email@example.com.
HC-UK: The Clinical Audit Summit 2018: Clinical Audit for Improvement
On the 5th March 2018 HC-UK will be hosting The Clinical Audit Summit 2018: Clinical Audit for Improvement which is being supported by HQIP and NQICAN. To view a document that contains all the relevant information and a sign up form at the bottom click here.
With our thanks for your continued contribution to the IBD Registry,
Dr Stuart Bloom, IBD Registry Chair
Dr Fraser Cummings, IBD Registry Clinical Lead
Find out more about:
The government have announced a national lockdown for England, starting on Thursday 5th November 2020, which includes specific guidance for clinically vulnerable people in England. There are different rules for the four nations: the new national restrictions for...
We have a big story to tell everyone, and we are looking for a Digital Communications Officer to help support our upcoming campaign to do just that. If you know someone who is digitally tech-savvy, skilled at campaign messaging, and can engage audiences with...
We are delighted to report that the Registry now holds a total of 72,331 records, following a marvellous submission effort from teams in July with an increase of 4,461 from 57 clinical teams this quarter. A warm welcome aboard to James Paget University Hospital, West...
We have two great resources for you to listen to learn more about the role that the Registry played in supporting clinical teams during the first wave of COVID-19 The role of patient-entered data in overcoming the COVID-19 information challenge In this educational...
The IBD Registry is growing, and we are excited and pleased to be able to advertise for four new roles to support us in this growth. These roles are opening for applications from Fri 14 August 2020. We will be interviewing on a rolling basis, but expect to start...