A data visualisation tool has been developed to help IBD teams review their performance against key performance indicators for biological therapies. The tool is available initially for users of the IBD Registry Web Tool. The charts show local data compared with benchmarked standards as well as the national average (based on Web tool users). The tool is intended to enable teams to review how well they are doing compared to the national standards, prompt them to identify where changes in care are required and support them to implement improvements. There is an opportunity to provide feedback on this tool, which we would welcome. It should take 5 minutes to complete and can be completed via this link. You can find out more at the IBD Registry Roadshow meetings and at the IBD Registry symposium at the BSG on 21st June.
HELP SHAPE THE IBD REGISTRY REPORTS – LIVERPOOL UNIVERSITY SURVEY
Funded by Crohn’s & Colitis UK, Keith Bodger and his team in Liverpool are working with the UK IBD Registry to develop data reports for IBD teams. The aim is to produce site level information to support local service planning, delivery and quality assurance. They’d like to get your views on some pilot data reports, and hope to present feedback during the IBD Registry Symposium at the BSG on Wednesday 21st June. Please follow the link below for more information and to provide your feedback on the draft reports:
https://www.surveymonkey.co.uk/r/UKIBDR-Reporting
IBD REGISTRY 2017 ROADSHOW
The 2017 Roadshow has visited Exeter, Cardiff, Warrington, Darlington and London, reaching over 95 IBD doctors, nurses, audit leads and other team members. With a focus on practical information and action planning, the meetings are a chance to think and plan away from the hospital, as well as a chance to share experiences and tips. Delegate feedback suggests some key themes:
- Seeing how the Registry can help teams to generate data that’s useful locally, to drive service development or improve quality.
- Getting a good understanding of different types of data entry systems
- Finding out how to get started, and where to find help when you need it.
QUARTERLY DATA SUBMISSION
The next data submission deadline is 30th June, so please make sure that you submit all of your data for the period up to 31st May. If you need any help at all in preparing for this, or if you have not yet registered with NHS Digital, please email [email protected]
DATA ENTRY GRANTS – DEADLINE EXTENDED TO 17TH JUNE 2017
The deadline for data entry grant applications has been extended to 17th June, but priority will be given to those who have applied by the initial deadline of 17th May. Please contact [email protected] for an application form. Applications need to be returned by 17th June 2017.
CALDICOTT GUARDIAN OPPORTUNITY
The Registry has a vacancy for a Caldicott Guardian to support all Information Governance aspects of the project. Please contact [email protected]for more information.
With our thanks for your continued contribution to the IBD Registry,
Dr Stuart Bloom,
IBD Registry Chair
Dr Fraser Cummings,
IBD Registry Clinical Lead