Successful data upload

Participating hospitals have just completed the latest upload of their IBD data to the Health and Social Care Information Centre (HSCIC) and the Registry now has data from 8 hospitals (6 using the Registry PMS, 1 using web tool and 1 sending data from their own database) with a total of 8,037 patients. Many thanks to all the clinical teams who submitted their data. This list of IBD patients has been used by the HSCIC to produce an extract from the NHS England Hospital Episode Statistics with all the patients’ outpatient, day case, inpatient and A&E attendances going back to 2005. This data will be analysed by the University of Liverpool who will provide each participating site with a report on their clinical and HES data..

Find out more about…

Latest News

2020: end of a long, strange year

Taking a much-needed few days rest at the end of a year that I think most of us didn't see coming. Carefully laid annual plans went out of the window in March to be replaced by COVID-19 reactive planning. That included the COVID-19 IBD Risk Tool, our sleeper surprise...

read more

Going purple for IBD Awareness Week 2020

1-7 December 2020 was IBD/Crohn's & Colitis Awareness Week. As the IBD Registry, we work closely with Crohn's & Colitis UK in support of people with all forms of inflammatory bowel disease.  We've taken the great work that Crohn's & Colitis do, and...

read more

National Lockdown starts (England) on 05 November 2020

The government have announced a national lockdown for England, starting on Thursday 5th November 2020, which includes specific guidance for clinically vulnerable people in England.   There are different rules for the four nations: the new national restrictions for...

read more

Looking for a Digital Communications Officer

We have a big story to tell everyone, and we are looking for a Digital Communications Officer to help support our upcoming campaign to do just that.   If you know someone who is digitally tech-savvy, skilled at campaign messaging, and can engage audiences with...

read more

72,331 records – thank you wonderful IBD teams

We are delighted to report that the Registry now holds a total of 72,331 records, following a marvellous submission effort from teams in July with an increase of 4,461 from 57 clinical teams this quarter. A warm welcome aboard to James Paget University Hospital, West...

read more
%d bloggers like this: