Successful data upload

Participating hospitals have just completed the latest upload of their IBD data to the Health and Social Care Information Centre (HSCIC) and the Registry now has data from 8 hospitals (6 using the Registry PMS, 1 using web tool and 1 sending data from their own database) with a total of 8,037 patients. Many thanks to all the clinical teams who submitted their data. This list of IBD patients has been used by the HSCIC to produce an extract from the NHS England Hospital Episode Statistics with all the patients’ outpatient, day case, inpatient and A&E attendances going back to 2005. This data will be analysed by the University of Liverpool who will provide each participating site with a report on their clinical and HES data..

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Latest News

71,719 records – thank you wonderful IBD teams

We are delighted to report that the Registry now holds a total of 71,719 records, following a marvelous submission effort from teams in July with an increase of 3,849 from 59 clinical teams this quarter. A warm welcome aboard to James Paget University Hospital, West...

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The Registry and COVID-19 – to listen to

We have two great resources for you to listen to learn more about the role that the Registry played in supporting clinical teams during the first wave of COVID-19 The role of patient-entered data in overcoming the COVID-19 information challenge In this educational...

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4 new posts available at the IBD Registry (we are growing!)

The IBD Registry is growing, and we are excited and pleased to be able to advertise for four new roles to support us in this growth.  These roles are opening for applications from Fri 14 August 2020.  We will be interviewing on a rolling basis, but expect to start...

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End of shielding in the UK nations

The UK governments have introduced a relaxation of shielding measures for high risk people, although you may be asked to shield again if there's an outbreak in your local area. The shielding scheme in England, Northern Ireland and Scotland paused from 31 July 2020,...

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July 2020 – now over 67,000 patient records

We are delighted to report that the Registry now holds a total of 67,870 records, following a marvellous submission effort from teams in July with an increase of 4,689 from 56 clinical teams – a remarkable achievement given the pressure on IBD services currently....

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