Successful data upload
Participating hospitals have just completed the latest upload of their IBD data to the Health and Social Care Information Centre (HSCIC) and the Registry now has data from 8 hospitals (6 using the Registry PMS, 1 using web tool and 1 sending data from their own database) with a total of 8,037 patients. Many thanks to all the clinical teams who submitted their data. This list of IBD patients has been used by the HSCIC to produce an extract from the NHS England Hospital Episode Statistics with all the patients’ outpatient, day case, inpatient and A&E attendances going back to 2005. This data will be analysed by the University of Liverpool who will provide each participating site with a report on their clinical and HES data..
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Data and reporting Milestone HES reports sent to sites this week Earlier this week, HES reports were sent to all Registry sites that have submitted data to NHS Digital, fulfilling a long-held Registry aim to make information work better for patients, clinical teams...read more
2017 has been a pivotal year in the development of the IBD Registry. Continued hard work from IBD teams across the country has resulted in 33,321 patient records being uploaded by 53 sites. Thanks to an idea from our Industry Working Group, we set up a data entry...read more
The IBD Registry team have realised a long-held ambition to use routinely collected hospital episode statistics (HES) data to supplement the clinical data collected by sites, in a ground-breaking initiative led by Keith Bodgerread more
It is with great regret and sadness that we have to inform you of the untimely passing of our friend and colleague Richard Driscoll. Richard passed away on the morning of Saturday 21st October, following a cardiac arrest last week. He is survived by his wife Aviva,...read more
This month the IBD Registry achieved two participation milestones: we moved past 30,000 patient records (up to 31,614) and now have 51 sites submitting data to the Registry.read more