The IBD Registry Web Tool provides a database on a centrally-hosted server accessed through the NHS N3 network. The Web Tool enables data to be captured at the point of clinical care, provides immediate access to a summary of the patient’s disease and current care and can generate clinically useful outputs and basic service profiling information. The Web Tool also has a data visualisation tool embedded in the system to help IBD teams track performance against key performance indicators for biologics. The charts show local data compared with the national standards and the national average performance of all participating hospitals.
The Web Tool has a built-in extract process to produce data files ready for upload to the Registry. Depending on the amount of data submitted to the Registry, IBD Teams will receive reports on the number of registered patients, admissions, surgery, and medications benchmarked against the national Registry data. The Registry Web Tool is the online platform for national IBD Audit from 2017 onwards. The BSG is obliged to make a partial cost-recovery charge to use the Registry Web Tool which is currently £1,000 per year for each Trust database.
Approaches to data entry
One misconception regarding the IBD Registry and data entry is that IBD teams must enter all their IBD patient data on the system as soon as possible. This is not logistically possible nor is it a reasonable expectation of busy IBD teams. The IBD Registry advocates a ‘little and often’ approach to data entry; this is a much more manageable and attainable process for IBD teams and helps secure the long-term sustainability of data entry.
The IBD Registry has a few examples of how IBD teams, participating in the Registry, have tackled data entry:
- Enter the first two or three patients each day onto the Web Tool.
- Initially only add the biologics KPI data for new biologics patients, once they are all on the system start to enter existing patients.
- Acquiring data administrative support from an audit department.
- Utilise the Audit department to register the IBD patients on the Web Tool so that the patient record is on the system before patient arrives at the clinic.
- Recording the data for biologics KPIs on paper based pro formas which are passed on to the audit team to input into the Web Tool.
Importing your historic RCP biologics data into the IBD Registry Web Tool
To arrange a date to have your RCP biologics data imported into the IBD Registry Web Tool please contact Mark at firstname.lastname@example.org. In order to have your data imported the Web Tool must be placed offline and as a result only a set number of sites can be imported each week. Full details on how to arrange for your data to be imported into the IBD Registry Web Tool are found here.