Join us as our first Projects and Operations Manager

About the opportunity

The IBD Registry is the first and largest repository of UK IBD (inflammatory bowel disease) data.  There are approx. 500,000 people in the UK with inflammatory bowel disease, which is debilitating and difficult to manage and is still not well understood.

Our mission is to provide better understanding based on data, to improve care of and treatments for patients, better information for clinicians and other stakeholders, with the aim throughout of improving outcomes for patients.

We’re a small and young not-for-profit company growing quickly, and as well as ongoing operations, we have a number of key new projects in the health informatics field to deliver on in 2020.  This includes being part of the high profile £5million IBD Hub programme, for which we are working in partnership with Cambridge University Hospitals in a leading-edge data solution to bring together diverse and separate health datasets to enable research into IBD.

While we are a small and lean organisation, we play a big role in improving people’s lives.  We work directly with hospitals, doctors and nurses across the UK; with drug studies, with the NHS, as well as with key Universities including Liverpool (biostatistics).

To support us in our growth, we are looking for a motivated and experienced Projects & Operations Manager to take this new senior position in our organisation in order to lead on management and successful delivery of our health informatics projects, which cover data warehousing, working with hospitals on data sharing, information governance compliance and structuring projects in response to clinical and data studies requests.

This is a new role in our growing organisation, and is a great opportunity for someone looking to really make a difference in both their job and in the world.  You’ll get the chance to think innovatively and creatively to help embed new ideas as the organisation develops, and help to shape our organisation as we grow.

For full Job Description and Person Specification, please read our full Job pack here: IBD Registry Projects Operations Manager Role v2.0 FINAL



About you

We’re looking for someone who wants to make a difference, more than just doing a job.  You need a can-do attitude and hands-on approach combined with an inbuilt ability to think and express yourself in a structured way, whether it is about data, project planning, compliance right down to materials and documentation.

Our ideal candidate has experience that covers these four areas:

  • Project management skills, able to confidently plan and schedule project activities and track project milestones and deliverables. This is a delivery-focused role, and our ideal candidate will have a track record of success in this key area. Our projects are all comparatively small, so this is very much a hands-on role, combining own work, stakeholder management and key staff input to achieve successful delivery.  We operate in a changing environment, and so the ability to work in an agile fashion, responding and adapting to change quickly is essential;
  • Project solution structuring, setting up studies for industry and the NHS, working with staff and stakeholders to define the project scope, goals and deliverables. Our projects typically involve studies into aspects of IBD using our data, alone or in combination with other datasets, or using our data collection tools; thus a background or experience working in the pharmaceutical industry or the NHS would be highly advantageous here, otherwise transferable skills in project structuring such as consultancy or an IT implementation background;
  • Competent informatics and/or technical understanding, ideally gained in a professional solutions consultancy, systems engineering and/or data management environment. The emphasis is on using that knowledge in relationships management, keeping the partners in the project on track rather than deep technical or software development skills. Our work is in health informatics and so a strong and comfortable understanding of working with structured data is essential (i.e. definitely a confident Excel poweruser,  ideally also with an understanding of databases or data management and SQL)
  • Compliance management exposure, with experience of working in a highly-regulated professional working environments, where policies and procedures are a built-in way of life. A key part of the work will be to lead the annual review process to ensure that the processes and procedures we have in place are fully compliant with the exacting information governance and data security regulatory landscape in which we work.  The emphasis here is not on being an expert in data protection laws (although that would be very useful indeed) but in having a good understanding of the data protection and compliance landscape, in order to be able to work with our IG specialists to turn their expert advice into operational action and results.




Job offer details

This role is initially offered as a fixed term role (12 months) for 32 hours/week (which can be worked as 4 or 5 days/week) at a salary between £37,800 – £42,000 FTE depending on experience.  

(The role is offered fixed-term due to the next year being a period of growth and change, including the large IBD Hub project changes running in that period.  The role will be assessed towards the end of the term, with the possibility of extension or permanent). 

We offer 25 days holiday each year plus 8 Bank Holidays (all FTE, pro-rata for part time); plus a 5% employer’s contribution to your pension.

Our fulltime (FTE) working week is 40 hours/week, and there may be a requirement to periodically work outside of standard office hours (usually remotely), for example, to fit in with clinical schedules.

We are a young and growing company, and so there is great scope for skills development and real career development opportunity.

Interviews will be at our offices in Epsom, only 30 minutes train journey from Waterloo, Victoria and Blackfriars, 15 minutes from Wimbledon. You must have the right to work in the UK.

To apply, all candidates are required to complete and submit the following:

Our Application Form covering three points: why you are the right candidate for this role; how you fit the Person Specification, plus details of your current salary package and notice period and contact details of two referees including the context in which they know you (one of these should be your current or most recent employer. We will not contact your referees without your prior permission)

(Please note that we will not accept applications that are just a generic CV)

We can only accept applications from candidates who have the right to work in the UK.

If you have any questions, please email Katie at [email protected]



Dates and applying

Closing date for applications: Sunday 20th January 2020

Interview dates:  Monday 27 – Thursday 30th January 2020.  Please be prepared for an interview in this date window when you apply (if you cannot make these dates, please continue to apply and state this in your cover letter, with date when you are available).  If you have a preference for a morning, afternoon or evening is required (we cannot guarantee we can meet your preference but it helps us to know).

We will be shortlisting and inviting for interview on Monday 21st January 2020; we will inform eligible candidates (who have properly completed an Application Form)if you have not been invited for interview.

IBD Registry Ltd is a not-for-profit company limited by guarantee - Company Number 11197749.
Our Registered Address is 3 St Andrews Place, Regent’s Park, London NW1 4LB. VAT Number 291683766.