Resources for hospitals

Find all our helpful guides in one place. To download, simply scroll to the bottom of the relevant guide and click the link. And please contact us if there are any other topics you’d like help with.

Useful guides

NEW 2019 - Deleting a patient from IBD Registry and NHS Digital

If a patient withholds or withdraws their consent for their information to be passed to the IBD Registry then this is a two step process to record this. This guide shows you how to do this using the Web Tool, PMS software or other.

Download the guide here

Using the Web Tool to track KPIs

Monitoring performance against the IBD Registry Biologics Audit KPIs is important for Trusts aiming to achieve the standards for Quality Accounts in England. This guide shows you how to do this using the Web Tool.

Download the guide here

Extracting your data from the Web Tool

This guide describes how to extract IBD Registry data from the Web Tool onto your desktop and how to upload these files to NHS Digital.

Download the guide here.

Retrieve your historic RCP data using the Web Tool

The national IBD Audit run by the Royal College of Physicians collected data on IBD patients for many years. If you took part in this audit you can import your historical data into the IBD Registry Web Tool. Find out how. Site can no longer export their data, this should already have been completed.

Download the guide here.

Web Tool Data Visualisation

The Web Tool has a new data visualisation function that allows teams to track progress against biologics KPIs and respond appropriately. Want a quick introduction to this new feature?

Download the guide here.

Using Infoflex to track KPIs

Download the guide here.

Extracting data using Infoflex

This guide describes how you can extract IBD Registry data from the InfoFlex patient management system onto your desktop.

Download the guide here.

Uploading data to the Registry from an existing EPR

This guide will primarily be used by hospital IT teams. It details the format data must be converted to before uploading to the IBD Registry.

Download the guide here.

Business case resources

Modelling Caseload for IBD CNS CCUK report 2017	Download	(782kb, PDF)
Business Case Example	Download	(92kb, PDF)

Other resources

IBD pre-biologics check list Aintree	Download	(34kb, Word file)
Simple Clinical Colitis Activity Mar-17 Aintree	Download	(23kb, Word file)
IBD Patient PROM and disease score questionnaire v1 Cardiff	Download	(20kb, Word file)
IBD Patient disease questionnaire v1 Cardiff	Download	(20kb, Word file)
HBI Crohns Activity-Mar 17 Aintree	Download	(24kb, Word file)
IBD Registry NHS Digital user registration form	Download	(107kb, Word file)

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Latest News

We are growing. Do you want to work for the Registry?

Jan 18, 2019

The IBD Registry is starting on its next phase of growth, and we have 2 positions to fill to help us grow. We currently work with about 70 UK hospitals, the NHS, Universities, healthtech companies, a number of pharmaceutical companies and our group of specialist...

Xmas Holiday Period Cover 2018

Dec 14, 2018

We will be closed over the key Xmas and New Year dates (Mon 24th, Tues 25th and Wed 26th December; then Monday 31st December and Tuesday 1st January 2019). For those catching up on data capture in the Xmas quiet period, we are running an essential support service on...

Could your IBD service improve?

Sep 18, 2018

Continuing its mission to improve the care that people with IBD receive, the Royal College of Physicians is offering IBD teams an opportunity to participate in a new quality improvement collaborative, consisting of three 1-day learning sessions and supported action...

IBD Registry has a new home

Aug 30, 2018

Following the establishment of IBD Registry Limited as an independent not-for-profit company, we have moved offices to: The IBD Registry The Ebbisham Centre 6-7 Derby Square EPSOM KT19 8AG Telephone (unchanged): 020 393 3969 Contact (unchanged):...

We’re at BSG 2018

Jun 4, 2018

If you’re coming to the BSG Annual Meeting in Liverpool next week, do come and say hello to us – we’re at stand B58 in the exhibition.