It is possible to extract a list of newly diagnosed patients from the WebTool (making use of the built in ‘extract’ function, the same one that extracts data to send on to the Registry). We have created a helpsheet on how to do this here.

At the start of April 2020, the WebTool had a second extract built into it to allow clinical teams to extract a list of patients at greater risk from COVID-19. Select Here for the helpsheet on how to use this

Here is an outline of the changes, which have been made mainly to support the drug safety projects the Registry is commencing. You will notice some other small changes that we hope are useful.  You can download the guide here 

This guide describes how to extract IBD Registry data from the Web Tool onto your desktop and how to upload these files to NHS Digital.

Download the guide here.

If a patient withholds or withdraws their consent for their information to be passed to the IBD Registry then this is a two-step process to record this.  This guide shows you how to do this using the Web Tool, PMS software or other.

Download the guide here

This guide describes how you can extract IBD Registry data from the InfoFlex patient management system onto your desktop.

Download the guide here.

This guide will primarily be used by hospital IT teams. It details the format data must be converted to before uploading to the IBD Registry.

Download the guide here.