Resources for hospitals
Find all our helpful guides in one place. To download, simply scroll to the bottom of the relevant
Useful guides
WebTool: Extracting a list of newly diagnosed patients
It is possible to extract a list of newly diagnosed patients from the WebTool (making use of the built in ‘extract’ function, the same one that extracts data to send on to the Registry). We have created a helpsheet on how to do this here.
COVID-19: Extracting a list of at risk patients from the WebTool
At the start of April 2020, the WebTool had a second extract built into it to allow clinical teams to extract a list of patients at greater risk from COVID-19. Select Here for the helpsheet on how to use this
WebTool: Changes to support drug safety project
Here is an outline of the changes, which have been made mainly to support the drug safety projects the Registry is commencing. You will notice some other small changes that we hope are useful. You can download the guide here
WebTool: Extracting your data from the Web Tool
This guide describes how to extract IBD Registry data from the Web Tool onto your desktop and how to upload these files to NHS Digital.
Download the guide here.
Deleting a patient from IBD Registry and NHS Digital
If a patient withholds or withdraws their consent for their information to be passed to the IBD Registry then this is a two-step process to record this. This guide shows you how to do this using the Web Tool, PMS software or other.
Download the guide here
Extracting data using Infoflex
This guide describes how you can extract IBD Registry data from the InfoFlex patient management system onto your desktop.
Download the guide here.
Uploading data to the Registry from an existing EPR
This guide will primarily be used by hospital IT teams. It details the format data must be converted to before uploading to the IBD Registry.
Download the guide here.
Other resources
| IBD pre-biologics check list Aintree (34kb, Word file) | Download |
| Simple Clinical Colitis Activity Mar-17 Aintree (23kb, Word file) | Download |
| IBD Patient PROM and disease score questionnaire v1 Cardiff (20kb, Word file) | Download |
| IBD Patient disease questionnaire v1 Cardiff (20kb, Word file) | Download |
| HBI Crohns Activity-Mar 17 Aintree (24kb, Word file) | Download |
| IBD Registry NHS Digital user registration form (107kb, Word file) | Download |
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