Resources for hospitals

Find all our helpful guides in one place. To download, simply scroll to the bottom of the relevant guide and click the link. And please contact us if there are any other topics you’d like help with.

Useful guides

Using the Web Tool to track KPIs

Monitoring performance against the IBD Registry Biologics Audit KPIs is important for Trusts aiming to achieve the standards for Quality Accounts in England. This guide shows you how to do this using the Web Tool.

Download the guide here

Extracting your data from the Web Tool

This guide describes how to extract IBD Registry data from the Web Tool onto your desktop and how to upload these files to NHS Digital.

Download the guide here.

Retrieve your historic RCP data using the Web Tool

The national IBD Audit run by the Royal College of Physicians collected data on IBD patients for many years. If you took part in this audit you can import your historical data into the IBD Registry Web Tool. Find out how. Site can no longer export their data, this should already have been completed.

Download the guide here.

Web Tool Data Visualisation

The Web Tool has a new data visualisation function that allows teams to track progress against biologics KPIs and respond appropriately. Want a quick introduction to this new feature?

Download the guide here.

Using Infoflex to track KPIs

Monitoring performance against the IBD Registry Biologics Audit KPIs is important for Trusts aiming to achieve the standards for Quality Accounts in England. This guide shows you how to do this using the InfoFlex patient management system.

Download the guide here.

Extracting data using Infoflex

This guide describes how you can extract IBD Registry data from the InfoFlex patient management system onto your desktop.

Download the guide here.

Uploading data to the Registry from an existing EPR

This guide will primarily be used by hospital IT teams. It details the format data must be converted to before uploading to the IBD Registry.

Download the guide here.

Business case resources

Modelling Caseload for IBD CNS CCUK report 2017Download(782kb, PDF)
Business Case ExampleDownload(92kb, PDF)

Other resources

IBD pre-biologics check list AintreeDownload(34kb, Word file)
Simple Clinical Colitis Activity Mar-17 AintreeDownload(23kb, Word file)
IBD Patient PROM and disease score questionnaire v1 CardiffDownload(20kb, Word file)
IBD Patient disease questionnaire v1 CardiffDownload(20kb, Word file)
HBI Crohns Activity-Mar 17 AintreeDownload(24kb, Word file)
IBD Registry NHS Digital user registration formDownload(107kb, Word file)

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Latest News

IBD Biologics Audit in Quality Accounts 2018/19

Quality Accounts in England We are delighted to announce that the IBD Registry biologics audit has been included by NHS England in Quality Accounts for 2018/19. We encourage all sites to participate in the biologics audit, as it will help to ensure that IBD patients...

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Milestone HES reports released!

Data and reporting   Milestone HES reports sent to sites this week Earlier this week, HES reports were sent to all Registry sites that have submitted data to NHS Digital, fulfilling a long-held Registry aim to make information work better for patients, clinical teams...

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2017 Review

2017 has been a pivotal year in the development of the IBD Registry. Continued hard work from IBD teams across the country has resulted in 33,321 patient records being uploaded by 53 sites. Thanks to an idea from our Industry Working Group, we set up a data entry...

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HES reports

The IBD Registry team have realised a long-held ambition to use routinely collected hospital episode statistics (HES) data to supplement the clinical data collected by sites, in a ground-breaking initiative led by Keith Bodger

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