Resources for hospitals
Find all our helpful guides in one place. To download, simply scroll to the bottom of the relevant
Useful guides
NEW 2019 - Deleting a patient from IBD Registry and NHS Digital
If a patient withholds or withdraws their consent for their information to be passed to the IBD Registry then this is a two-step process to record this. This guide shows you how to do this using the Web Tool, PMS software or other.
Download the guide here
Extracting your data from the Web Tool
This guide describes how to extract IBD Registry data from the Web Tool onto your desktop and how to upload these files to NHS Digital.
Download the guide here.
Extracting data using Infoflex
This guide describes how you can extract IBD Registry data from the InfoFlex patient management system onto your desktop.
Download the guide here.
Web Tool Data Visualisation
The Web Tool has a new data visualisation function that allows teams to track progress against biologics KPIs and respond appropriately. Want a quick introduction to this new feature?
Download the guide here.
Uploading data to the Registry from an existing EPR
This guide will primarily be used by hospital IT teams. It details the format data must be converted to before uploading to the IBD Registry.
Download the guide here.
Other resources
| IBD pre-biologics check list Aintree (34kb, Word file) | Download |
| Simple Clinical Colitis Activity Mar-17 Aintree (23kb, Word file) | Download |
| IBD Patient PROM and disease score questionnaire v1 Cardiff (20kb, Word file) | Download |
| IBD Patient disease questionnaire v1 Cardiff (20kb, Word file) | Download |
| HBI Crohns Activity-Mar 17 Aintree (24kb, Word file) | Download |
| IBD Registry NHS Digital user registration form (107kb, Word file) | Download |
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