Transparency Information

At the IBD Registry, we are committed to protecting your personal information and being transparent about what we do with it. We will use your personal information in accordance with all applicable laws concerning the protection of personal information and not to do anything with your information you wouldn’t reasonably expect.

Our Privacy Statement details our use of your personal information, for patients, for job seekers, for employees, for other contacts and for website users.

We will additionally list here, if applicable, the summary results of any Data Protection Impact Assessments that we undertake, to assure you of the steps that we take to protect your data.

NEW: IBD Registry, patient consent and the National data opt-out - FINAL  (PDF 150KB)  

IBD Registry Patient information leaflet – April 2019Download here
IBD Registry Large Font/Accessible Patient information leaflet – April 2019Download here
IBD Registry Adult consent form – May 2018Download here
IBD Registry Paediatric consent form – May 2018Download here
IBD Registry A4 poster - May 2018Download here
IBD Registry patient consent guidance for hospitals (England and Wales) - August 2017Download here

 

 

 

Contact us

020 3393 3969
[email protected]

IBD Registry Ltd is a not-for-profit company limited by guarantee - Company Number 11197749.
Our Registered Address is 3 St Andrews Place, Regent’s Park, London NW1 4LB. VAT Number 291683766.