On June 25, 2015 over 120 delegates at the IBD in the UK symposium at DDF heard the inspiring vision of how services can be improved to better serve the needs of people with IBD, and the innovative ways in which technology can be employed to support people, and data used to drive continuous improvement. Speakers from the clinical and patient community gave real insight on how collaboration can improve services and patient care in IBD. You can see the videos here and the powerpoint presentations here.
The IBD Registry Academic Poster illustrating how the registry can deliver tangible local benefits and positive impact nationally can be viewed here.
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Quality Accounts in England We are delighted to announce that the IBD Registry biologics audit has been included by NHS England in Quality Accounts for 2018/19. We encourage all sites to participate in the biologics audit, as it will help to ensure that IBD patients...read more
The IBD Registry is looking for an exceptional individual to help drive the next phase of its growth, as it expands to become a new legal entity, founded by the British Society of Gastroenterology (BSG), Crohn’s and Colitis UK and the Royal College of Physicians...read more
Data and reporting Milestone HES reports sent to sites this week Earlier this week, HES reports were sent to all Registry sites that have submitted data to NHS Digital, fulfilling a long-held Registry aim to make information work better for patients, clinical teams...read more
2017 has been a pivotal year in the development of the IBD Registry. Continued hard work from IBD teams across the country has resulted in 33,321 patient records being uploaded by 53 sites. Thanks to an idea from our Industry Working Group, we set up a data entry...read more
The IBD Registry team have realised a long-held ambition to use routinely collected hospital episode statistics (HES) data to supplement the clinical data collected by sites, in a ground-breaking initiative led by Keith Bodgerread more