News
Exciting CEO opportunity with the IBD Registry – could you be our first Chief Executive?
The IBD Registry is looking for an exceptional individual to help drive the next phase of its growth, as it expands to become a new legal entity, founded by the British Society of Gastroenterology (BSG), Crohn’s and Colitis UK and the Royal College of Physicians...
Milestone HES reports released!
Earlier this week, HES reports were sent to all Registry sites that have submitted data to NHS Digital, fulfilling a long-held Registry aim to make information work better for patients, clinical teams and the NHS.
2017 Review
2017 has been a pivotal year in the development of the IBD Registry. Continued hard work from IBD teams across the country has resulted in 33,321 patient records being uploaded by 53 sites. Thanks to an idea from our Industry Working Group, we set up a data entry...
HES reports
The IBD Registry team have realised a long-held ambition to use routinely collected hospital episode statistics (HES) data to supplement the clinical data collected by sites, in a ground-breaking initiative led by Keith Bodger
Richard Driscoll 1950-2017
It is with great regret and sadness that we have to inform you of the untimely passing of our friend and colleague Richard Driscoll. Richard passed away on the morning of Saturday 21st October, following a cardiac arrest last week. He is survived by his wife Aviva,...
Patient Records Pass 30,000
This month the IBD Registry achieved two participation milestones: we moved past 30,000 patient records (up to 31,614) and now have 51 sites submitting data to the Registry.
Quarterly Reports out this Month
The first quarterly reports will be sent to sites in October. Participating sites will receive a summary profile of the data they have submitted to the Registry in June 2017.
We’re updating the drug dictionary
The IBD Registry are currently in the process of updating the core dataset, in particular we are updating and amending the list of medications in the drug dictionary…
Registry Roadshow Wins Award
We’re absolutely delighted that the 2016 IBD Registry Roadshow has won the Communiqué Award for Excellence in Healthcare Collaboration and Partnerships. The Roadshow was a real team effort, with enormous commitment from the BSG, the Audit team at the RCP,...
IBD Registry Symposium at BSG
A very successful session was held at the BSG Meeting with a broad Registry update from Fraser Cummings, a patient perspective from David Barker including a video message from Carrie Grant, an introduction to the new Data Visualisation charts on the...
New Data Visualisation Tools for QI
A data visualisation tool has been developed to help IBD teams review their performance against key performance indicators for biological therapies. The tool is available initially for users of the IBD Registry Web Tool. The charts show local data...
Converting your RCP Biologics Audit Data
NEW DATA VISUALISATION TOOLS FOR QUALITY IMPROVEMENT A data visualisation tool has been developed to help IBD teams track performance against key performance indicators for biologics. The tool has been developed for the Registry by CIMS as an add-on to...
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