January Headlines

The RCP audit now has closed so you need to export your data if you haven’t already done so. A data visualisation module for the Registry Web Tool will be piloted soon. NHS England has included the IBD Registry Biologics Audit on the Quality Accounts list for the coming year.

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UK IBD REGISTRY ENDS YEAR ON A HIGH NOTE

We reached the end of 2016 with 60 sites actively participating in the IBD Registry, and over 21,000 patient records submitted. 80 sites in total have a ‘live’ system for data capture, and 21 additional sites are in the process of setting up so we expect...

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Latest IBD Registry data submission and site numbers

As we approach the end of the year, the Registry team would like to thank all the IBD teams who have now joined the project for all their hard work. We’ve reached an important milestone in November with 20 sites now having submitted data, giving a total...

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Upload your patient data in November!

We are asking all sites that have any patient data live on a Registry-compatible system to upload their patient data to NHS Digital (HSCIC) during November. This is really important as the BSG Trustees will be assessing BSG support for the Registry/Audit...

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Local value of Registry data – the Dorset experience

With the launch of the IBD Registry web tool last month, we’re all set for every IBD team in the UK to join in, and to start to benefit from collecting useful local data to help deliver better patient care and support service development. Here Pearl Avery...

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IBD Registry web tool launched!

We’re delighted to announce that the web tool is now live, and the first sites are currently on track to be entering data by mid-August. We have secured the necessary permissions for hospitals in the devolved nations to access the Registry Web Tool...

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BSG meeting June 2016

Join Stuart Bloom, Ian Arnott, Pearl Avery, Keith Bodger and Fraser Cummings at the BSG meeting in Liverpool next month. Delivering Quality with the IBD Registry will give you a chance to find out more about IBD Audit and IBD Registry plans as the...

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Regional Meetings and Next Steps

Most of you who came to a regional meeting have written a local plan focusing on the next steps you need to take to join the Registry. We hope you've been able to put your plan into action, but if you have come up against any barriers that you think the...

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Latest data submission March 2016

We now have information from 11 hospitals on 12,246 IBD patients (up from 8 hospitals and 8,037 IBD patients last quarter). 3 additional teams have registered with HSCIC, so are ready to contribute their data next time. We’re making steady progress with...

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We’re recruiting a data manager

The new post of Data Manager has been created to be responsible for maintaining and updating the central database systems within the IBD Registry IT infrastructure. This will involve set up of new hospital and user registrations, user helpline enquiries and configuring the databases and reports. Training in the InfoFlex software will be provided.

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A reminder about consent

From May 2016 all patients in the Registry will need to be consented; there are four separate consent questions and our experience so far suggests patients tend to consent to all. Informed consent for Registry. This allows personal demographic and...

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Latest News

Quarterly Reports out this Month

The first quarterly reports will be sent to sites in October. Participating sites will receive a summary profile of the data they have submitted to the Registry in June 2017.

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We’re updating the drug dictionary

The IBD Registry are currently in the process of updating the core dataset, in particular we are updating and amending the list of medications in the drug dictionary…

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Registry Roadshow Wins Award

We’re absolutely delighted that the 2016 IBD Registry Roadshow has won the Communiqué Award for Excellence in Healthcare Collaboration and Partnerships. The Roadshow was a real team effort, with enormous commitment from the BSG, the Audit team at the RCP,...

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IBD Registry Symposium at BSG

A very successful session was held at the BSG Meeting with a broad Registry update from Fraser Cummings, a patient perspective from David Barker including a video message from Carrie Grant, an introduction to the new Data Visualisation charts on the...

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New Data Visualisation Tools for QI

A data visualisation tool has been developed to help IBD teams review their performance against key performance indicators for biological therapies. The tool is available initially for users of the IBD Registry Web Tool. The charts show local data...

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