Registry Roadshow Wins Award

We’re absolutely delighted that the 2016 IBD Registry Roadshow has won the Communiqué Award for Excellence in Healthcare Collaboration and Partnerships. The Roadshow was a real team effort, with enormous commitment from the BSG, the Audit team at the RCP,...

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IBD Registry Symposium at BSG

A very successful session was held at the BSG Meeting with a broad Registry update from Fraser Cummings, a patient perspective from David Barker including a video message from Carrie Grant, an introduction to the new Data Visualisation charts on the...

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New Data Visualisation Tools for QI

A data visualisation tool has been developed to help IBD teams review their performance against key performance indicators for biological therapies. The tool is available initially for users of the IBD Registry Web Tool. The charts show local data...

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Converting your RCP Biologics Audit Data

NEW DATA VISUALISATION TOOLS FOR QUALITY IMPROVEMENT A data visualisation tool has been developed to help IBD teams track performance against key performance indicators for biologics. The tool has been developed for the Registry by CIMS as an add-on to...

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2017 Roadshow Announced

A series of half-day meetings to support clinical teams as they join the IBD Registry. The sessions provide protected time for teams to learn about the Biologics Audit and QI programme using the IBD Registry, and to develop local plans for Registry adoption. Each...

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January Headlines

The RCP audit now has closed so you need to export your data if you haven’t already done so. A data visualisation module for the Registry Web Tool will be piloted soon. NHS England has included the IBD Registry Biologics Audit on the Quality Accounts list for the coming year.

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UK IBD REGISTRY ENDS YEAR ON A HIGH NOTE

We reached the end of 2016 with 60 sites actively participating in the IBD Registry, and over 21,000 patient records submitted. 80 sites in total have a ‘live’ system for data capture, and 21 additional sites are in the process of setting up so we expect...

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Latest IBD Registry data submission and site numbers

As we approach the end of the year, the Registry team would like to thank all the IBD teams who have now joined the project for all their hard work. We’ve reached an important milestone in November with 20 sites now having submitted data, giving a total...

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Upload your patient data in November!

We are asking all sites that have any patient data live on a Registry-compatible system to upload their patient data to NHS Digital (HSCIC) during November. This is really important as the BSG Trustees will be assessing BSG support for the Registry/Audit...

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Local value of Registry data – the Dorset experience

With the launch of the IBD Registry web tool last month, we’re all set for every IBD team in the UK to join in, and to start to benefit from collecting useful local data to help deliver better patient care and support service development. Here Pearl Avery...

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IBD Registry web tool launched!

We’re delighted to announce that the web tool is now live, and the first sites are currently on track to be entering data by mid-August. We have secured the necessary permissions for hospitals in the devolved nations to access the Registry Web Tool...

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Latest News

Milestone HES reports released!

Earlier this week, HES reports were sent to all Registry sites that have submitted data to NHS Digital, fulfilling a long-held Registry aim to make information work better for patients, clinical teams and the NHS.

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2017 Review

2017 has been a pivotal year in the development of the IBD Registry. Continued hard work from IBD teams across the country has resulted in 33,321 patient records being uploaded by 53 sites. Thanks to an idea from our Industry Working Group, we set up a data entry...

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HES reports

The IBD Registry team have realised a long-held ambition to use routinely collected hospital episode statistics (HES) data to supplement the clinical data collected by sites, in a ground-breaking initiative led by Keith Bodger

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Richard Driscoll 1950-2017

It is with great regret and sadness that we have to inform you of the untimely passing of our friend and colleague Richard Driscoll. Richard passed away on the morning of Saturday 21st October, following a cardiac arrest last week. He is survived by his wife Aviva,...

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Patient Records Pass 30,000

This month the IBD Registry achieved two participation milestones: we moved past 30,000 patient records (up to 31,614) and now have 51 sites submitting data to the Registry.

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