We’re absolutely delighted that the 2016 IBD Registry Roadshow has won the Communiqué Award for Excellence in Healthcare Collaboration and Partnerships. The Roadshow was a real team effort, with enormous commitment from the BSG, the Audit team at the RCP,...

A very successful session was held at the BSG Meeting with a broad Registry update from Fraser Cummings, a patient perspective from David Barker including a video message from Carrie Grant, an introduction to the new Data Visualisation charts on the...

A data visualisation tool has been developed to help IBD teams review their performance against key performance indicators for biological therapies. The tool is available initially for users of the IBD Registry Web Tool. The charts show local data...

NEW DATA VISUALISATION TOOLS FOR QUALITY IMPROVEMENT A data visualisation tool has been developed to help IBD teams track performance against key performance indicators for biologics. The tool has been developed for the Registry by CIMS as an add-on to...

A series of half-day meetings to support clinical teams as they join the IBD Registry. The sessions provide protected time for teams to learn about the Biologics Audit and QI programme using the IBD Registry, and to develop local plans for Registry adoption. Each...

The RCP audit now has closed so you need to export your data if you haven’t already done so. A data visualisation module for the Registry Web Tool will be piloted soon. NHS England has included the IBD Registry Biologics Audit on the Quality Accounts list for the coming year.

We reached the end of 2016 with 60 sites actively participating in the IBD Registry, and over 21,000 patient records submitted. 80 sites in total have a ‘live’ system for data capture, and 21 additional sites are in the process of setting up so we expect...

As we approach the end of the year, the Registry team would like to thank all the IBD teams who have now joined the project for all their hard work. We’ve reached an important milestone in November with 20 sites now having submitted data, giving a total...

We are asking all sites that have any patient data live on a Registry-compatible system to upload their patient data to NHS Digital (HSCIC) during November. This is really important as the BSG Trustees will be assessing BSG support for the Registry/Audit...

The report suggests that biosimilars are safe and effective for IBD patients and if adopted can reduce the cost of treatment by half. This is the final report produced by  the UK IBD audit at the Royal College of Physicians. Data collection to support...

With the launch of the IBD Registry web tool last month, we’re all set for every IBD team in the UK to join in, and to start to benefit from collecting useful local data to help deliver better patient care and support service development. Here Pearl Avery...

We’re delighted to announce that the web tool is now live, and the first sites are currently on track to be entering data by mid-August. We have secured the necessary permissions for hospitals in the devolved nations to access the Registry Web Tool...