Milestone HES reports released!

Milestone HES reports released!

Data and reporting   Milestone HES reports sent to sites this week Earlier this week, HES reports were sent to all Registry sites that have submitted data to NHS Digital, fulfilling a long-held Registry aim to make information work better for patients, clinical teams...

2017 Review

2017 has been a pivotal year in the development of the IBD Registry. Continued hard work from IBD teams across the country has resulted in 33,321 patient records being uploaded by 53 sites. Thanks to an idea from our Industry Working Group, we set up a data entry...

HES reports

Registry plans In 2018, the Registry aims to become an independent not-for-profit organisation, with the support of key partners British Society of Gastroenterology (BSG), Crohn’s and Colitis UK and the Royal College of Physicians. Further progress will be reported...

Richard Driscoll 1950-2017

It is with great regret and sadness that we have to inform you of the untimely passing of our friend and colleague Richard Driscoll. Richard passed away on the morning of Saturday 21st October, following a cardiac arrest last week. He is survived by his wife Aviva,...

Patient Records Pass 30,000

Richard Driscoll It is with great regret and sadness that we have to inform you of the untimely passing of our friend and colleague Richard Driscoll. Richard passed away on the morning of Saturday 21st October, following a cardiac arrest. He is survived by his wife...

Quarterly Reports out this Month

Patient Consent Update Good news!  We have received an extension of our Section 251 exemption for England and Wales until May 2018, which means that consent is assumed unless patients opt out, and data can be submitted without formal consent. Posters (available from...

We’re updating the drug dictionary

Data Drug Dictionary  Update We are updating the core dataset, including the list of medications, in the drug dictionary. Many thanks to those of you who have already sent suggestions. If you have changes you’d like to propose please contact our Data Manager, Mark...

Registry Roadshow Wins Award

We’re absolutely delighted that the 2016 IBD Registry Roadshow has won the Communiqué Award for Excellence in Healthcare Collaboration and Partnerships. The Roadshow was a real team effort, with enormous commitment from the BSG, the Audit team at the RCP, Crohn’s and...

IBD Registry Symposium at BSG

A very successful session was held at the BSG Meeting with a broad Registry update from Fraser Cummings, a patient perspective from David Barker including a video message from Carrie Grant, an introduction to the new Data Visualisation charts on the Registry Web Tool...

New Data Visualisation Tools for QI

A data visualisation tool has been developed to help IBD teams review their performance against key performance indicators for biological therapies. The tool is available initially for users of the IBD Registry Web Tool. The charts show local data compared with...