We’re at BSG 2018

  BSG conference   Come and meet us! If you’re coming to the BSG Annual Meeting in Liverpool next week, do come and say hello to us – we’re at stand B58 in the exhibition. We will have presentations running, our data entry tools plus samples of the reports that result...
IBD Registry’s GDPR special addition

IBD Registry’s GDPR special addition

As we’re sure you know, the General Data Protection Regulation (GDPR) comes into force on 25th May. This newsletter is to let you know what’s changed at the IBD Registry to be compliant with the new regulations. URGENT! Agreements for Data Sharing & Data...

A warm hello from Liz, our new CEO

I have been on board as the CEO of the IBD Registry for just two weeks now, but it has only taken that short time to get a real sense of the goodwill that people have for the Registry, as well as the dedication of the clinical teams in entering data, and the hopes and...

Liz Dobson appointed as CEO

First IBD Registry CEO appointed The IBD Registry Board is delighted to announce the appointment of Liz Dobson as the first Chief Executive Officer of IBD Registry Ltd from 16th April 2018. Liz brings to the IBD Registry 20 years of executive and senior management...

New IBD Registry organisation launched

Registry to be boosted by new partnership The British Society of Gastroenterology (BSG), The Royal College of Physicians (RCP), and Crohn’s and Colitis UK, have joined forces to launch IBD Registry Ltd – an independent not-for-profit company and a new legal entity...
IBD Biologics Audit in Quality Accounts 2018/19

IBD Biologics Audit in Quality Accounts 2018/19

Quality Accounts in England We are delighted to announce that the IBD Registry biologics audit has been included by NHS England in Quality Accounts for 2018/19. We encourage all sites to participate in the biologics audit, as it will help to ensure that IBD patients...
Milestone HES reports released!

Milestone HES reports released!

Data and reporting   Milestone HES reports sent to sites this week Earlier this week, HES reports were sent to all Registry sites that have submitted data to NHS Digital, fulfilling a long-held Registry aim to make information work better for patients, clinical teams...

2017 Review

2017 has been a pivotal year in the development of the IBD Registry. Continued hard work from IBD teams across the country has resulted in 33,321 patient records being uploaded by 53 sites. Thanks to an idea from our Industry Working Group, we set up a data entry...

HES reports

Registry plans In 2018, the Registry aims to become an independent not-for-profit organisation, with the support of key partners British Society of Gastroenterology (BSG), Crohn’s and Colitis UK and the Royal College of Physicians. Further progress will be reported...