Be part of a leading project at the forefront of data science in the UK – be our Data and Analytics Manager

About the opportunity

The IBD Registry is the first and largest repository of UK IBD (inflammatory bowel disease) data.  There are approx. 500,000 people in the UK with IBD, a chronic disease which can be debilitating, difficult to manage and is still not well understood. Our mission is to provide better understanding based on data, to improve care of and treatments for patients, better information for clinicians and other stakeholders, with the aim throughout of improving outcomes for patients.

We are an independent not-for-profit company, co-owned by the British Society of Gastroenterology, the Royal College of Physicians and the patient organisation Crohn’s and Colitis UK.  Although we are a small organisation we play a big role in improving people’s lives.  We work directly with hospitals, doctors and nurses across the UK; with drug studies, with the NHS, as well as with key Universities in the fields of biostatistics and data analytics.  We are deeply involved in the fast-moving and exciting area of health data, and the technologies that underpin and transform that data.

Starting this month, we have partnered with Cambridge University Hospitals and the University of Cambridge on a 3 year/£5M project funded by Health Data Research UK to link and make accessible diverse datasets in a Hub for researchers.  This project will involve the FHIR transformation of our existing dataset and linkage of it with Bioresource IBD dataset and also with the key NHS HES and electronic Prescribing datasets . This is a national project very much at the leading edge, looking to transform the landscape for researchers and the data they need for their work. The Data and Analytics Manager will play a key role in this project – an outstanding opportunity to work at the very forefront of data science.

The Full Job Description

Please see here for our full Job Description and Person Specification Pack:  IBD Registry Data and Analytics Manager Role v2.0 FINAL

About you

We’re looking for an experienced and organised Data and Analytics Manager to lead the Registry’s effective collection of clinical, consent and patient reported data, and assure our ongoing provision of quality data through innovative data curation and data analytics processes,  We are looking for someone who is organised, methodical and motivated, has proven numeracy and accuracy skills, and has a structured problem solving approach and a can-do attitude.  The team is small and needs to work closely in support of each other (as well as in support of clients), so good interpersonal skills and communications skills are essential.  Our candidate will have significant experience in advanced data management, ideally within a healthcare setting, especially the world of hospitals, clinicians and pharmaceutical companies that we support and engage with.  Candidates should have relevant data and technology experience, an understanding of data protection and an appreciation of supporting potentially non-technical end users.  This role will be directly involved with the Hub project, working in at the leading edge of data curation, integration and linkage with outstanding data specialists across the UK.

We’re looking for someone who wants to make a difference, more than just doing a job. Our ideal candidate has a positive approach coupled with the attention to detail inherent in a data management role. You need to have a can-do attitude and hands-on approach combined with an inbuilt ability to think and express themselves in a structured way, whether it is about data, project planning, or compliance. Our ideal candidate is an enthusiastic problem-solver, keen to learn new things, who meets issues with ‘how can I overcome that?’ and unknowns with ‘how can I learn how to do that?’

The Data and Analytics Manager will work closely with the Clinical Lead for Data Integration and the Academic Lead as well as the CEO.  Our clients are mainly hospital trusts and our specialists are medical clinicians (doctors), so exposure to the medical world is helpful but not necessary.

Job offer details

​This is a permanent role for 5 days/week (40 hours) (or alternative possible is 32 hours/week worked over 4 – 5 days/week), and offering a salary between £39,600 – £44,000 FTE depending on relevant experience. 

We offer 25 days holiday each year plus 8 Bank Holidays (all FTE, pro-rata for part time); plus a 5% employer’s contribution to your pension.

Our fulltime (FTE) working week is 40 hours/week, and there may be a requirement to periodically work outside of standard office hours (usually remotely), for example, to fit in with clinical schedules.

We are a young and growing company, and so there is great scope for skills development and real career development opportunity.

To apply

To apply, all candidates are required to complete and submit the following:

  • our Application Form covering three points: why you are the right candidate for this role; how you fit the Person Specification, plus details of your current salary package and notice period, and contact details of two referees including the context in which they know you (one of these should be your current or most recent employer; we will not contact referees without asking you first)
  • IBDR Application Form (Oct 2019)
  • you may also optionally send your CV (maximum 2 pages)

(Please note that we will not accept applications that are just a generic CV)

We can only accept applications from candidates who have the right to work in the UK.

If you have any questions, and to send in your application form, please contact Steve Barron at Reed (Epsom) on [email protected]  Steve is a committed supporter of both ourselves and also our parent organisation Crohn’s and Colitis UK, and is looking to find the right candidate for us for this important vacancy.

Dates and applying

Closing date for applications: Sunday 19th January 2020 @ midnight

Interview dates: Monday 27th – Thursday 30th January. Please indicate in your return email if you cannot attend a certain day, and if you have a preference for a morning, afternoon or evening is required (we cannot guarantee we can meet your preference but it helps us to know). Please hold at least one of these days free for interview on applying.

Shortlisting: we will be shortlisting on Monday 20th January 2020, and will let all eligible candidates (who have completed the Application Form as requested) know whether they have been invited for interview

IBD Registry Ltd is a not-for-profit company limited by guarantee - Company Number 11197749.
Our Registered Address is 3 St Andrews Place, Regent’s Park, London NW1 4LB. VAT Number 291683766.