Why Join the Registry?
Being part of the IBD Registry is one of the IBD Standards. It brings benefits in terms of quality, safety and efficiency to clinical teams and hospitals. Having better local data collected electronically helps teams to manage their IBD service more effectively. Clinicians can access shared, current information at the point of care to inform treatment decisions. Local reports facilitate audit and activity reporting, and work lists make safety monitoring and reviewing practice against standards and guidelines easy to do.
Local data can be used to support business cases for service development and negotiations with CCGs in England. The team at Luton and Dunstable University Hospital used data collected using the PMS to demonstrate the value to patients of its telephone consultations; the CCG agreed to pay for them when they avert an outpatient appointment and the savings have funded a new IBD specialist nurse. In Dorset, data provided to the CCG resulted in the IBD service helpline being funded for the first time in its 20 history.
The 2016-17 focus on key performance indicators (KPIs) for biological therapies supports better local management of biologics patients and gives clinical teams the chance to be part of a national audit of the safety and appropriate use of biologics and biosimilars, informing local and national practice.
|IBD Registry biologics KPIs 2016-17 – September 2016|
Information on the KPIs that have been selected for the ongoing biological therapies data collection through 2016/10/17
Clinicians can also use activity data for CPD, appraisal and revalidation.
Teams can participate using a choice of data entry systems to suit their local needs.
Dr Keith Bodger explains some of the benefits of joining the IBD Registry
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The UK governments have introduced a relaxation of shielding measures for high risk people, although you may be asked to shield again if there's an outbreak in your local area. The shielding scheme in England, Northern Ireland and Scotland paused from 31 July 2020,...
We are delighted to report that the Registry now holds a total of 67,870 records, following a marvellous submission effort from teams in July with an increase of 4,689 from 56 clinical teams – a remarkable achievement given the pressure on IBD services currently....
In response to “significantly falling” infection rates, the Government has announced changes to “shielding” guidance in England and Wales. The government has already eased restrictions in early July, in the lead up to a pause in the programme from the 1st August 2020,...
Important information for Registry-participating clinical teams: with the COVID-19 outbreak, to ease pressure on clinical teams we postponed the last (April) submission deadline. The next submission deadline is 10 July 2020 for data to the end of June, including all...
Over 32,000 people in the UK with IBD have self-assessed their risk since launch on the 1 April 2020. Between them, they have identified the 175 hospitals (Trusts and Health Boards) that provide them with care, and the data has been shared back to their doctors which...