Why Join the Registry?

Being part of the IBD Registry is one of the IBD Standards. It brings benefits in terms of quality, safety and efficiency to clinical teams and hospitals. Having better local data collected electronically helps teams to manage their IBD service more effectively. Clinicians can access shared, current information at the point of care to inform treatment decisions. Local reports facilitate audit and activity reporting, and work lists make safety monitoring and reviewing practice against standards and guidelines easy to do.

Local data can be used to support business cases for service development and negotiations with CCGs in England. The team at Luton and Dunstable University Hospital used data collected using the PMS to demonstrate the value to patients of its telephone consultations; the CCG agreed to pay for them when they avert an outpatient appointment and the savings have funded a new IBD specialist nurse. In Dorset, data provided to the CCG resulted in the IBD service helpline being funded for the first time in its 20 history.

The 2016-17 focus on key performance indicators (KPIs) for biological therapies supports better local management of biologics patients and gives clinical teams the chance to be part of a national audit of the safety and appropriate use of biologics and biosimilars, informing local and national practice.

IBD Registry biologics KPIs 2016-17 – September 2016
Information on the KPIs that have been selected for the ongoing biological therapies data collection through 2016/10/17
Download here

Clinicians can also use activity data for CPD, appraisal and revalidation.

Teams can participate using a choice of data entry systems to suit their local needs.

Dr Keith Bodger explains some of the benefits of joining the IBD Registry

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Latest News

71,719 records – thank you wonderful IBD teams

We are delighted to report that the Registry now holds a total of 71,719 records, following a marvelous submission effort from teams in July with an increase of 3,849 from 59 clinical teams this quarter. A warm welcome aboard to James Paget University Hospital, West...

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The Registry and COVID-19 – to listen to

We have two great resources for you to listen to learn more about the role that the Registry played in supporting clinical teams during the first wave of COVID-19 The role of patient-entered data in overcoming the COVID-19 information challenge In this educational...

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4 new posts available at the IBD Registry (we are growing!)

The IBD Registry is growing, and we are excited and pleased to be able to advertise for four new roles to support us in this growth.  These roles are opening for applications from Fri 14 August 2020.  We will be interviewing on a rolling basis, but expect to start...

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End of shielding in the UK nations

The UK governments have introduced a relaxation of shielding measures for high risk people, although you may be asked to shield again if there's an outbreak in your local area. The shielding scheme in England, Northern Ireland and Scotland paused from 31 July 2020,...

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July 2020 – now over 67,000 patient records

We are delighted to report that the Registry now holds a total of 67,870 records, following a marvellous submission effort from teams in July with an increase of 4,689 from 56 clinical teams – a remarkable achievement given the pressure on IBD services currently....

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