Why Join the Registry?

Being part of the IBD Registry is one of the IBD Standards. It brings benefits in terms of quality, safety and efficiency to clinical teams and hospitals. Having better local data collected electronically helps teams to manage their IBD service more effectively. Clinicians can access shared, current information at the point of care to inform treatment decisions. Local reports facilitate audit and activity reporting, and work lists make safety monitoring and reviewing practice against standards and guidelines easy to do.

Local data can be used to support business cases for service development and negotiations with CCGs in England. The team at Luton and Dunstable University Hospital used data collected using the PMS to demonstrate the value to patients of its telephone consultations; the CCG agreed to pay for them when they avert an outpatient appointment and the savings have funded a new IBD specialist nurse. In Dorset, data provided to the CCG resulted in the IBD service helpline being funded for the first time in its 20 history.

The 2016-17 focus on key performance indicators (KPIs) for biological therapies supports better local management of biologics patients and gives clinical teams the chance to be part of a national audit of the safety and appropriate use of biologics and biosimilars, informing local and national practice.

IBD Registry biologics KPIs 2016-17 – September 2016
Information on the KPIs that have been selected for the ongoing biological therapies data collection through 2016/10/17
Download here

Clinicians can also use activity data for CPD, appraisal and revalidation.

Teams can participate using a choice of data entry systems to suit their local needs.

Dr Keith Bodger explains some of the benefits of joining the IBD Registry

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Latest News

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Over ten thousand people in the UK with IBD have entered their data over the past few days, many of them giving feedback on the Tool. This has helped us to make sure that the risk levels in the Tool are based on accurate, up-to-date information from patients. In...

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Abbreviated clinician news for IBD Teams – March 2020

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Registry surpasses 60,000 patient records

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