Why Join the Registry?
Being part of the IBD Registry is one of the IBD Standards. It brings benefits in terms of quality, safety and efficiency to clinical teams and hospitals. Having better local data collected electronically helps teams to manage their IBD service more effectively. Clinicians can access shared, current information at the point of care to inform treatment decisions. Local reports facilitate audit and activity reporting, and work lists make safety monitoring and reviewing practice against standards and guidelines easy to do.
Local data can be used to support business cases for service development and negotiations with CCGs in England. The team at Luton and Dunstable University Hospital used data collected using the PMS to demonstrate the value to patients of its telephone consultations; the CCG agreed to pay for them when they avert an outpatient appointment and the savings have funded a new IBD specialist nurse. In Dorset, data provided to the CCG resulted in the IBD service helpline being funded for the first time in its 20 history.
The 2016-17 focus on key performance indicators (KPIs) for biological therapies supports better local management of biologics patients and gives clinical teams the chance to be part of a national audit of the safety and appropriate use of biologics and biosimilars, informing local and national practice.
|IBD Registry biologics KPIs 2016-17 – September 2016|
Information on the KPIs that have been selected for the ongoing biological therapies data collection through 2016/10/17
Clinicians can also use activity data for CPD, appraisal and revalidation.
Teams can participate using a choice of data entry systems to suit their local needs.
Dr Keith Bodger explains some of the benefits of joining the IBD Registry
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The IBD Registry Board is delighted to announce the appointment of Liz Dobson as the first Chief Executive Officer of IBD Registry Ltd from 16th April 2018.read more
The British Society of Gastroenterology (BSG), The Royal College of Physicians (RCP), and Crohn’s and Colitis UK, have joined forces to launch IBD Registry Ltd.read more
We are delighted to announce that the IBD Registry biologics audit has been included by NHS England in Quality Accounts for 2018/19.read more
The IBD Registry is looking for an exceptional individual to help drive the next phase of its growth, as it expands to become a new legal entity, founded by the British Society of Gastroenterology (BSG), Crohn’s and Colitis UK and the Royal College of Physicians...read more
Earlier this week, HES reports were sent to all Registry sites that have submitted data to NHS Digital, fulfilling a long-held Registry aim to make information work better for patients, clinical teams and the NHS.read more