Transition from IBD Audit to IBD Registry

In 2016 the national IBD audit is coming to an end, and the IBD Registry is becoming the vehicle for the biological therapies audit and quality improvement programme. Teams can participate using a choice of data entry systems including some local systems they may have in their hospital already.

The IBD Registry provides the infrastructure to capture pseudonymised IBD patient data and link it with routinely collected NHS hospital statistics. Bringing this data together for the first time will:

  • Drive continuous improvement in patient care and access to care across the UK
  • Inform commissioning and service design
  • Improve our understanding of long term outcomes
  • Provide local, regional & national data in order to better define the pattern of ulcerative colitis and Crohn’s disease
  • Support IBD research

Being part of the IBD Registry will give participating teams access to better local data to manage their biologics patients and IBD service more effectively, while patients, clinicians and the NHS will all benefit from national audit of the safety and appropriate use of biologics and biosimilars. In time, the combined UK data will become a unique resource for real-world clinical effectiveness and health economic studies in IBD care.

The audit and Registry teams are working closely to manage the transition and you can find a list of frequently asked questions here:
FAQs on IBD programme transition to Registry

NHS England’s Quality Accounts

The IBD Registry’s IBD Biologics Audit was part of NHS England’s Quality Accounts programme for 2017/18 and has been included in the programme for 2018/19. You can read more about NHS England’s Quality Accounts here.

 

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Latest News

4 new posts available at the IBD Registry (we are growing!)

The IBD Registry is growing, and we are excited and pleased to be able to advertise for four new roles to support us in this growth.  These roles are opening for applications from Fri 14 August 2020.  We will be interviewing on a rolling basis, but expect to start...

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End of shielding in the UK nations

The UK governments have introduced a relaxation of shielding measures for high risk people, although you may be asked to shield again if there's an outbreak in your local area. The shielding scheme in England, Northern Ireland and Scotland paused from 31 July 2020,...

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July 2020 – now over 67,000 patient records

We are delighted to report that the Registry now holds a total of 67,870 records, following a marvellous submission effort from teams in July with an increase of 4,689 from 56 clinical teams – a remarkable achievement given the pressure on IBD services currently....

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For clinical teams: next submission is 10 July 2020

Important information for Registry-participating clinical teams: with the COVID-19 outbreak, to ease pressure on clinical teams we postponed the last (April) submission deadline. The next submission deadline is 10 July 2020 for data to the end of June, including all...

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