Huge congratulations to IBD clinical teams across the country – we have surpassed the 60,000 patient record mark.
At time of writing we hold 63,181 records. 62 IBD teams submitted for this last quarter, 24% more than the same period last year.
Figure: number of records held and IBD teams which have ever participated at time of writing.
This quarter’s submissions also mean that, at time of writing, the number of IBD teams which have submitted to the Registry ever now stands at a record 92 – thanks and congratulations to all these IBD teams. The five IBD teams submitting the highest numbers of patient records this quarter were:
- Poole Hospital NHS Foundation Trust
- St George’s University Hospitals NHS Foundation Trust
- Royal Cornwall Hospitals NHS Trust
- Royal United Hospitals Bath NHS Foundation Trust
- Surrey and Sussex Healthcare NHS Trust
Finally, on patient records, we should offer a warm welcome to our newest participating IBD team – Imperial College Healthcare NHS Trust in London; thank you for joining; it’s great to have you on board!
For further information please contact the IBD Registry on 020 3393 3969 or email firstname.lastname@example.org
Find out more about:
Important information for Registry-participating clinical teams: with the COVID-19 outbreak, to ease pressure on clinical teams we postponed the last (April) submission deadline. The next submission deadline is 10 July 2020 for data to the end of June, including all...
Over 32,000 people in the UK with IBD have self-assessed their risk since launch on the 1 April 2020. Between them, they have identified the 175 hospitals (Trusts and Health Boards) that provide them with care, and the data has been shared back to their doctors which...
Given the special circumstances putting pressure on IBD teams and wider health services, we have created some in-depth articles below in an easy to read format: Switchers: Changing originator biologic to biosimilar Changing originator biologic to biosimilar With many...
With the COVID-19 outbreak and the resulting pressure on IBD clinical teams, the next IBD Registry data submission (planned beginning of April) has been relaxed, so that the next data submission dates will be 10 July followed by 9 Oct 2020. IBD clinical teams should...
PROMs: early benefits for care of IBD outpatients who directly report their symptoms via digital tablet
Pic: Pearl Avery, Clinical Nurse Specialist at Dorset County Hospital, by her clinical poster at ECCO2020, Vienna A UK nurse-led hospital team working with the IBD Registry has announced the success of an initiative to capture data reported directly by outpatients who...