Summer 2019 newsletter to clinical teams 2019
Registry news for IBD teams – Summer 2019
- Zessly safety study opens for interest
- Webtool upgrade – down time 17th July
- BSG 2019 Glasgow – IBD Data and Quality
- Survey: why do you participate in the IBD Registry?
- IBD audit requirements Quality Accounts 2019-20
- WebTool Wizards
- Supporting studies
- New IBD Standards in focus
- IBD Consensus Guidelines
- Support packs coming…
- Registry poster— audit of biological therapies in IBD unveiled
- Patient consent congrats to IBD teams
- PMS User Group—update
Find out more about:
The Health Quality Improvement Partnership (HQIP) has confirmed the IBD Registry as the provider organisation for Quality Accounts for NHS Trusts providing Inflammatory Bowel Disease (IBD) services in England & Wales. HQIP, which runs the Quality Accounts scheme...
Deadline extended – IBD teams should complete ‘IBD Benchmarking’ self-assessments by 31st January 2020
As you may be aware, the IBD Registry is delighted to be working with 16 other organisations to transform IBD care and outcomes in the UK as part of IBD UK. IBD UK launched in 2019 the revised IBD Service Standards, the organisational element of the full Inflammatory...
Registry public newsletter for winter 2020 - published January 2020 Including: Registry tops 60,000 patient records Complement-ing clinical data with patient reported out-comes Realising quality improvement in IBD Listening to IBD nurses Taking stock over the decade...
Taking stock As the IBD Registry approaches ten years since the concept of collecting real world information on the progress of people living with IBD, it is timely to look under the bonnet at the data collected so far. With over 60,000 records, the Registry is one...
In pursuit of our mission we have recently partnered with Cambridge University Hospitals and the University of Cambridge on a 3 year/£5million programme to link and make accessible diverse datasets in a Hub for researchers. This project will involve the FHIR...