Registry Roadshow Wins Award
We’re absolutely delighted that the 2016 IBD Registry Roadshow has won the Communiqué Award for Excellence in Healthcare Collaboration and Partnerships. The Roadshow was a real team effort, with enormous commitment from the BSG, the Audit team at the RCP, Crohn’s and Colitis UK, and sponsors Janssen, Shire, Takeda and Tillotts Pharma. Huge thanks and congratulations to all involved, especially the 2016 chairs and speakers:
Pearl Avery, David Barker, Stuart Bloom, Keith Bodger, Mick Collins, Simone Cort, Fraser Cummings, Richard Driscoll, Richard Gardner, Kay Greveson, Barney Hawthorne, Tariq Iqbal, John Mansfield, Ben Morison, Rafeeq Muhammed, Kajal Mortier, Susan Murray, Glynn Owen, Aimee Protheroe, Ian Shaw, Jeremy Thorpe, Jessica Watts.
You can find slides from this year’s Roadshow here.
CALDICOTT GUARDIAN OPPORTUNITY
The Registry has a vacancy for a Caldicott Guardian to support all Information Governance aspects of the project. Please contact firstname.lastname@example.org for more information.
It is great to see numbers continuing to grow thanks to your efforts. Site participation has increased from 25 to 38 over the past 6 months. Total records submitted are currently at 27,870 and this is predicted to rise above 30,000 over the next two months.
There are now 94 live sites. Of these 73 are registered with NHS Digital and a further 38 are submitting data.
QUARTERLY DATA SUBMISSION & REPORTS
Thank you to everyone who uploaded data to NHS Digital at the end of June. The quarterly reports will be made available in the next few weeks. Participating sites will receive a summary profile of the data they submitted to the Registry. Sites that are also uploading data as part of the Biologics Audit will also receive a summary showing compliance with the KPIs. Teams who missed the deadline will receive an example data report.
The next data submission deadlines are 30th September and 29th December. If you need any help at all in preparing for this, or if you have not yet registered with NHS Digital, please email email@example.com.
IBD NURSE & SpR PROGRAMMES
Dr Falk Pharma are hosting a Falk Forum on IBD & e-health – New Paradigms for service delivery on the 22nd September 2017 at Midland Hotel, Manchester. The meeting will explore the new opportunities that e-health provides, and will include further education, introduction to social media and practical take home messages. Richard Driscoll will also talk about how to join the Registry. To register please go to www.drfalk.co.uk/falk-forum-59.
Core and Dr Falk are running an award, open to UK-based gastroenterology specialty trainees who would like to conduct an audit or quality improvement project in gastroenterology, liver disease or nutrition. The deadline is 17th November 2017. To apply, visit http://corecharity.org.uk/research/research-awards-information/.
Tillotts IBD Nurse Education Day and Recognition Programme will be held on the 17th November 2017 in Solihull. The Education Day is practical and engaging event for IBD nurses, with broad, relevant educational content and discussion. The IBD Recognition Programme recognises nurses or teams who have developed an innovative project to improve patient care in IBD. For more information please email firstname.lastname@example.org. Deadline for entries is the 8th September 2017.
With our thanks for your continued engagement in the IBD Registry,
Dr Stuart Bloom, IBD Registry Chair
Dr Fraser Cummings, IBD Registry Clinical Lead
Find out more about…
The IBD Registry is growing, and we are excited and pleased to be able to advertise for four new roles to support us in this growth. These roles are opening for applications from Fri 14 August 2020. We will be interviewing on a rolling basis, but expect to start...
The UK governments have introduced a relaxation of shielding measures for high risk people, although you may be asked to shield again if there's an outbreak in your local area. The shielding scheme in England, Northern Ireland and Scotland paused from 31 July 2020,...
We are delighted to report that the Registry now holds a total of 67,870 records, following a marvellous submission effort from teams in July with an increase of 4,689 from 56 clinical teams – a remarkable achievement given the pressure on IBD services currently....
In response to “significantly falling” infection rates, the Government has announced changes to “shielding” guidance in England and Wales. The government has already eased restrictions in early July, in the lead up to a pause in the programme from the 1st August 2020,...
Important information for Registry-participating clinical teams: with the COVID-19 outbreak, to ease pressure on clinical teams we postponed the last (April) submission deadline. The next submission deadline is 10 July 2020 for data to the end of June, including all...