Upload your patient data in November!
We are asking all sites that have any patient data live on a Registry-compatible system to upload their patient data to NHS Digital (HSCIC) during November. This is really important as the BSG Trustees will be assessing BSG support for the Registry/Audit in 2017 when they have their December 2016 meeting and we want to be able to show the good progress the Registry is making by reporting the maximum possible numbers of sites contributing and the numbers of patients in the central Registry. Every upload, even if the patient numbers on your database are relatively low, will help. If you need any help at all to upload your data please contact [email protected]
IBD Audit Transition to IBD Registry
The UK IBD audit team at the Royal College of Physicians have delivered their final report, and data collection to support audit and quality improvement is now moving to the IBD Registry. Teams can participate using a choice of data entry systems including existing local systems. Being part of the IBD Registry will give teams:
- Local data to manage their biologics patients and IBD service more effectively
- The chance to be part of ongoing national audit of the safety and appropriate use of biologics and biosimilars
The goals for 2016/17 are:
- Transfer data collection from the RCP biological therapy audit web tool, which will be closing, to the IBD Registry.
- Develop a near-complete UK Register of IBD patients on biologics by the end of 2017
172 teams have now registered to be part of the project and there are 63 live sites using a variety of different data entry methods, with a further 20 in the pipeline. If you haven’t registered yet please contact [email protected]
The first two IBD teams in Scotland are now set up to use the IBD Registry Web Tool and Ian Arnott is chairing a Delivering Outpatient Integration Together (DOIT) IBD Service Development Day in Stirling on the 30th of November, where teams can find out more about how the various IT initiatives in Scotland will help to deliver the National Blueprint for Inflammatory Bowel Disease in Scotland and feed into the UK IBD Registry.
New consent materials
Following the extension of our Section 251 exemption for England and Wales until May 2017, consent is assumed unless patients opt out, and data can be submitted without formal consent having been obtained. Posters must be prominently displayed in clinic so that patients know your team is participating in the IBD Registry, but this extension gives clinical teams more time to gain written consent from all their patients. Please contact Simone ([email protected]) if you need clinic posters.
Following discussions with Crohn’s and Colitis UK and CICRA, we’ve added a question to the consent form to allow for the future use of fully anonymised and aggregated data in reports to health-related companies with an interest in IBD. The new consent materials are being sent to registered users and are available here. (Advice regarding the additional consent question is included in the Guidance for Hospitals document and is being sent to those IBD Teams that have already obtained consent from some patients.)
What to do next
If you’ve registered you will have information about what you need to do to participate. If you haven’t already done so, please register to be part of the programme using the form here.
If you’d like more information on any aspect of joining the IBD Registry or entering data please contact [email protected]
Find out more about…
The IBD Registry is inviting IBD clinical teams across the UK to participate in a post-marketing safety study of patients using biosimilar Zessly (infliximab). This study is facilitated by the Registry on behalf of Sandoz Ltd, the manufacturer of Zessly. The purpose...read more
The IBD Registry is delighted a presentation prepared by the Registry’s Analytics Hub at the University of Liverpool featured in the British Society of Gastroenterology Annual Meeting in Glasgow. The Audit of biological therapy for IBD - Shawihdi et al Poster BSG 2019...read more
The IBD Registry says the launch of the new IBD Standards, the first for six years, at the BSG Annual meeting in Glasgow today, Thursday, 20th June, will provide a catalyst to drive quality in inflammatory bowel disease (IBD). The IBD Standards, produced by IBD UK, an...read more
Continuing its mission to improve the care that people with IBD receive, the Royal College of Physicians is offering IBD teams an opportunity to participate in a new quality improvement collaborative, consisting of three 1-day learning sessions and supported action...read more
Following the establishment of IBD Registry Limited as an independent not-for-profit company, we have moved offices to: The IBD Registry The Ebbisham Centre 6-7 Derby Square EPSOM KT19 8AG Telephone (unchanged): 020 393 3969 Contact (unchanged):...read more