BSG meeting June 2016
Join Stuart Bloom, Ian Arnott, Pearl Avery, Keith Bodger and Fraser Cummings at the BSG meeting in Liverpool next month. Delivering Quality with the IBD Registry will give you a chance to find out more about IBD Audit and IBD Registry plans as the Registry takes over from the Audit as the vehicle for ongoing data collection. The session is on Thursday 23rd June 8:45-10:15 and will include group work and discussions to give you a chance to help shape the project.
If you can’t make the Thursday session, the IBD Audit Programme and IBD Registry teams will be sharing a stand in the charities section of the exhibition throughout the conference. Do come and see us to find out more about plans for the future.
April data submission
We are receiving data from participating sites and will update you on the numbers next month. If you are a site that now has patient data available and would like to start submitting that to the Registry, please email [email protected] and we will support you in making the necessary arrangements.
Web tool update and support for local implementation
The web tool has undergone its final development and testing so that sites can use it for ongoing data collection for audit and quality improvement. It will be available next month. Starter packs have been sent to all registered sites. If you haven’t received your starter pack please contact [email protected].
We have also drafted a letter which can be sent to Trust CEOs to ask for their assistance with Registry participation. The letter is signed by the BSG President, IBD Section Chair, IBD Registry Chair, IBD Audit Clinical Lead and the CEO of Crohn’s and Colitis UK. If you feel this would be helpful you can request a copy to be sent to your Trust CEO by emailing [email protected].
Crohn’s & Colitis UK Registry Research Project
As part of Crohn’s and Colitis UK funded registry research, the team at University of Liverpool (led by Keith Bodger) has generated reports of IBD-related activity for English hospitals based on anonymous HES data. Pilot local reports have been sent to selected hospital IBD teams in a first round of consultation. The next phase of the project will share reports more widely with Registry sites. Feedback from local teams will help to shape the content of reports and explore better ways to analyse the administrative data. The Registry is working to gain permission to extend reporting to similar administrative datasets in other parts of the UK. Future linkage to Registry data will aim to maximise the value of both sources of data to support service delivery and quality improvement.
The first patients’ data has been entered on the anaemia service evaluation pages of the web tool, demonstrating the ability to use the system for specific research or audit projects involving selected IBD Teams.
To find out more about joining the IBD Registry please contact [email protected]
Find out more about…
If you’re coming to the BSG Annual Meeting in Liverpool next week, do come and say hello to us – we’re at stand B58 in the exhibition.read more
As we’re sure you know, the General Data Protection Regulation (GDPR) comes into force on 25th May.
This newsletter is to let you know what’s changed at the IBD Registry to be compliant with the new regulations.read more
I have been on board as the CEO of the IBD Registry for just two weeks now, but it has only taken that short time to get a real sense of the goodwill that people have for the Registry, as well as the dedication of the clinical teams in entering data, and the hopes and...read more
The IBD Registry Board is delighted to announce the appointment of Liz Dobson as the first Chief Executive Officer of IBD Registry Ltd from 16th April 2018.read more
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