BSG meeting June 2016

Join Stuart Bloom, Ian Arnott, Pearl Avery, Keith Bodger and Fraser Cummings at the BSG meeting in Liverpool next month. Delivering Quality with the IBD Registry will give you a chance to find out more about IBD Audit and IBD Registry plans as the Registry takes over from the Audit as the vehicle for ongoing data collection. The session is on Thursday 23rd June 8:45-10:15 and will include group work and discussions to give you a chance to help shape the project.

If you can’t make the Thursday session, the IBD Audit Programme and IBD Registry teams will be sharing a stand in the charities section of the exhibition throughout the conference. Do come and see us to find out more about plans for the future.

April data submission

We are receiving data from participating sites and will update you on the numbers next month. If you are a site that now has patient data available and would like to start submitting that to the Registry, please email [email protected] and we will support you in making the necessary arrangements.

Web tool update and support for local implementation

The web tool has undergone its final development and testing so that sites can use it for ongoing data collection for audit and quality improvement. It will be available next month. Starter packs have been sent to all registered sites. If you haven’t received your starter pack please contact [email protected].

We have also drafted a letter which can be sent to Trust CEOs to ask for their assistance with Registry participation. The letter is signed by the BSG President, IBD Section Chair, IBD Registry Chair, IBD Audit Clinical Lead and the CEO of Crohn’s and Colitis UK. If you feel this would be helpful you can request a copy to be sent to your Trust CEO by emailing [email protected].

Crohn’s & Colitis UK Registry Research Project

As part of Crohn’s and Colitis UK funded registry research, the team at University of Liverpool (led by Keith Bodger) has generated reports of IBD-related activity for English hospitals based on anonymous HES data. Pilot local reports have been sent to selected hospital IBD teams in a first round of consultation. The next phase of the project will share reports more widely with Registry sites. Feedback from local teams will help to shape the content of reports and explore better ways to analyse the administrative data. The Registry is working to gain permission to extend reporting to similar administrative datasets in other parts of the UK. Future linkage to Registry data will aim to maximise the value of both sources of data to support service delivery and quality improvement.

Anaemia project

The first patients’ data has been entered on the anaemia service evaluation pages of the web tool, demonstrating the ability to use the system for specific research or audit projects involving selected IBD Teams.

To find out more about joining the IBD Registry please contact [email protected]

Find out more about…

Latest News

Milestone HES reports released!

Data and reporting   Milestone HES reports sent to sites this week Earlier this week, HES reports were sent to all Registry sites that have submitted data to NHS Digital, fulfilling a long-held Registry aim to make information work better for patients, clinical teams...

read more

2017 Review

2017 has been a pivotal year in the development of the IBD Registry. Continued hard work from IBD teams across the country has resulted in 33,321 patient records being uploaded by 53 sites. Thanks to an idea from our Industry Working Group, we set up a data entry...

read more

HES reports

The IBD Registry team have realised a long-held ambition to use routinely collected hospital episode statistics (HES) data to supplement the clinical data collected by sites, in a ground-breaking initiative led by Keith Bodger

read more

Richard Driscoll 1950-2017

It is with great regret and sadness that we have to inform you of the untimely passing of our friend and colleague Richard Driscoll. Richard passed away on the morning of Saturday 21st October, following a cardiac arrest last week. He is survived by his wife Aviva,...

read more

Patient Records Pass 30,000

This month the IBD Registry achieved two participation milestones: we moved past 30,000 patient records (up to 31,614) and now have 51 sites submitting data to the Registry.

read more