Regional Meetings and Next Steps
Most of you who came to a regional meeting have written a local plan focusing on the next steps you need to take to join the Registry. We hope you’ve been able to put your plan into action, but if you have come up against any barriers that you think the Registry team can help you with, please don’t hesitate to get in touch via email@example.com or by emailing firstname.lastname@example.org
For those of you who need to write a business case, we have an example on the Registry website here.
All the presentations from the regional meetings are available here.
For those looking for slides outlining local clinical and patient benefits, the section (in any of the regional meetings slide decks) on How Being Part Of The IBD Registry Might Help Improve An IBD Service should be of use.
Registry Meeting in Scotland
This was to be held on 20th April, but has been postponed and will be rearranged in a few months’ time. The IBD Registry is working closely with the IBD Audit Team at the Royal College of Physicians, with key Scottish gastroenterologists and with Crohn’s and Colitis UK to deliver a coordinated approach that makes sense for Scotland in the immediate and longer term. The development of this IBD IT strategy is taking place with the support of the Scottish Government and rather than hold the meeting now, we aim to arrange it when we can give more definite information about the technical solutions and the information governance issues.
IBD Section Chair
Barney Hawthorne has described the IBD Registry as a chance for UK gastroenterologists to do something world-leading, in terms of gathering data in real time, to better monitor our patients’ treatment and outcomes. See the whole interview here.
BSG meeting in June
Join us at the BSG in Liverpool on Thursday 23rd June 8:45-10:15 for an update on all the Registry projects. More details to follow soon.
The IBD audit programme and the IBD Registry will be sharing a stand and taking the opportunity to showcase their work going forward. Please come and meet us and hear more about the future plans.
IBD Audit news
The UK IBD Audit is moving towards an improved system for data capture and quality improvement, using the IBD Registry. This new programme of work remains on both the quality accounts list and the national clinical audit and patient outcomes programme (NCAPOP) in England. Your ongoing participation is very important, and you should have received a registration form from the IBD Audit team at the RCP so that you can sign up to be part of the new initiative. If you have any queries about this you can contact Jessica Watts, IBDProgramme@rcplondon.ac.uk
To find out more about joining the Registry click here or email email@example.com
Find out more about…
The UK governments have introduced a relaxation of shielding measures for high risk people, although you may be asked to shield again if there's an outbreak in your local area. The shielding scheme in England, Northern Ireland and Scotland paused from 31 July 2020,...
We are delighted to report that the Registry now holds a total of 67,870 records, following a marvellous submission effort from teams in July with an increase of 4,689 from 56 clinical teams – a remarkable achievement given the pressure on IBD services currently....
In response to “significantly falling” infection rates, the Government has announced changes to “shielding” guidance in England and Wales. The government has already eased restrictions in early July, in the lead up to a pause in the programme from the 1st August 2020,...
Important information for Registry-participating clinical teams: with the COVID-19 outbreak, to ease pressure on clinical teams we postponed the last (April) submission deadline. The next submission deadline is 10 July 2020 for data to the end of June, including all...
Over 32,000 people in the UK with IBD have self-assessed their risk since launch on the 1 April 2020. Between them, they have identified the 175 hospitals (Trusts and Health Boards) that provide them with care, and the data has been shared back to their doctors which...