Regional Meetings and Next Steps

Most of you who came to a regional meeting have written a local plan focusing on the next steps you need to take to join the Registry. We hope you’ve been able to put your plan into action, but if you have come up against any barriers that you think the Registry team can help you with, please don’t hesitate to get in touch via info@ibdregistry.co.uk or by emailing simone.cort@ibdregistry.org.uk

For those of you who need to write a business case, we have an example on the Registry website here.

All the presentations from the regional meetings are available here.

For those looking for slides outlining local clinical and patient benefits, the section (in any of the regional meetings slide decks) on How Being Part Of The IBD Registry Might Help Improve An IBD Service should be of use.

Registry Meeting in Scotland

This was to be held on 20th April, but has been postponed and will be rearranged in a few months’ time. The IBD Registry is working closely with the IBD Audit Team at the Royal College of Physicians, with key Scottish gastroenterologists and with Crohn’s and Colitis UK to deliver a coordinated approach that makes sense for Scotland in the immediate and longer term. The development of this IBD IT strategy is taking place with the support of the Scottish Government and rather than hold the meeting now, we aim to arrange it when we can give more definite information about the technical solutions and the information governance issues.

IBD Section Chair

Barney Hawthorne has described the IBD Registry as a chance for UK gastroenterologists to do something world-leading, in terms of gathering data in real time, to better monitor our patients’ treatment and outcomes. See the whole interview here.

BSG meeting in June

Join us at the BSG in Liverpool on Thursday 23rd June 8:45-10:15 for an update on all the Registry projects. More details to follow soon.

The IBD audit programme and the IBD Registry will be sharing a stand and taking the opportunity to showcase their work going forward. Please come and meet us and hear more about the future plans.

IBD Audit news

The UK IBD Audit is moving towards an improved system for data capture and quality improvement, using the IBD Registry. This new programme of work remains on both the quality accounts list and the national clinical audit and patient outcomes programme (NCAPOP) in England. Your ongoing participation is very important, and you should have received a registration form from the IBD Audit team at the RCP so that you can sign up to be part of the new initiative. If you have any queries about this you can contact Jessica Watts, IBDProgramme@rcplondon.ac.uk

To find out more about joining the Registry click here or email simone.cort@ibdregistry.org.uk

Find out more about…

Latest News

2020: end of a long, strange year

Taking a much-needed few days rest at the end of a year that I think most of us didn't see coming. Carefully laid annual plans went out of the window in March to be replaced by COVID-19 reactive planning. That included the COVID-19 IBD Risk Tool, our sleeper surprise...

read more

Going purple for IBD Awareness Week 2020

1-7 December 2020 was IBD/Crohn's & Colitis Awareness Week. As the IBD Registry, we work closely with Crohn's & Colitis UK in support of people with all forms of inflammatory bowel disease.  We've taken the great work that Crohn's & Colitis do, and...

read more

National Lockdown starts (England) on 05 November 2020

The government have announced a national lockdown for England, starting on Thursday 5th November 2020, which includes specific guidance for clinically vulnerable people in England.   There are different rules for the four nations: the new national restrictions for...

read more

Looking for a Digital Communications Officer

We have a big story to tell everyone, and we are looking for a Digital Communications Officer to help support our upcoming campaign to do just that.   If you know someone who is digitally tech-savvy, skilled at campaign messaging, and can engage audiences with...

read more

72,331 records – thank you wonderful IBD teams

We are delighted to report that the Registry now holds a total of 72,331 records, following a marvellous submission effort from teams in July with an increase of 4,461 from 57 clinical teams this quarter. A warm welcome aboard to James Paget University Hospital, West...

read more
%d bloggers like this: