Regional Meetings and Next Steps
Most of you who came to a regional meeting have written a local plan focusing on the next steps you need to take to join the Registry. We hope you’ve been able to put your plan into action, but if you have come up against any barriers that you think the Registry team can help you with, please don’t hesitate to get in touch via [email protected] or by emailing [email protected]
For those of you who need to write a business case, we have an example on the Registry website here.
All the presentations from the regional meetings are available here.
For those looking for slides outlining local clinical and patient benefits, the section (in any of the regional meetings slide decks) on How Being Part Of The IBD Registry Might Help Improve An IBD Service should be of use.
Registry Meeting in Scotland
This was to be held on 20th April, but has been postponed and will be rearranged in a few months’ time. The IBD Registry is working closely with the IBD Audit Team at the Royal College of Physicians, with key Scottish gastroenterologists and with Crohn’s and Colitis UK to deliver a coordinated approach that makes sense for Scotland in the immediate and longer term. The development of this IBD IT strategy is taking place with the support of the Scottish Government and rather than hold the meeting now, we aim to arrange it when we can give more definite information about the technical solutions and the information governance issues.
IBD Section Chair
Barney Hawthorne has described the IBD Registry as a chance for UK gastroenterologists to do something world-leading, in terms of gathering data in real time, to better monitor our patients’ treatment and outcomes. See the whole interview here.
BSG meeting in June
Join us at the BSG in Liverpool on Thursday 23rd June 8:45-10:15 for an update on all the Registry projects. More details to follow soon.
The IBD audit programme and the IBD Registry will be sharing a stand and taking the opportunity to showcase their work going forward. Please come and meet us and hear more about the future plans.
IBD Audit news
The UK IBD Audit is moving towards an improved system for data capture and quality improvement, using the IBD Registry. This new programme of work remains on both the quality accounts list and the national clinical audit and patient outcomes programme (NCAPOP) in England. Your ongoing participation is very important, and you should have received a registration form from the IBD Audit team at the RCP so that you can sign up to be part of the new initiative. If you have any queries about this you can contact Jessica Watts, [email protected]
To find out more about joining the Registry click here or email [email protected]
Find out more about…
If you’re coming to the BSG Annual Meeting in Liverpool next week, do come and say hello to us – we’re at stand B58 in the exhibition.read more
As we’re sure you know, the General Data Protection Regulation (GDPR) comes into force on 25th May.
This newsletter is to let you know what’s changed at the IBD Registry to be compliant with the new regulations.read more
I have been on board as the CEO of the IBD Registry for just two weeks now, but it has only taken that short time to get a real sense of the goodwill that people have for the Registry, as well as the dedication of the clinical teams in entering data, and the hopes and...read more
The IBD Registry Board is delighted to announce the appointment of Liz Dobson as the first Chief Executive Officer of IBD Registry Ltd from 16th April 2018.read more
The British Society of Gastroenterology (BSG), The Royal College of Physicians (RCP), and Crohn’s and Colitis UK, have joined forces to launch IBD Registry Ltd.read more