Latest data submission March 2016
We now have information from 11 hospitals on 12,246 IBD patients (up from 8 hospitals and 8,037 IBD patients last quarter). 3 additional teams have registered with HSCIC, so are ready to contribute their data next time.
We’re making steady progress with participation and importantly, we have now successfully uploaded data not only from sites using the IBD Registry Patient Management System (PMS) but also sites using the Emis system, 2 web tool sites and one hospital using an in-house database, demonstrating the infrastructure for all the different data capture options. That infrastructure will also allow us to deliver other projects.
The Registry is currently recruiting a Data Manager who will enable us to begin providing a standard report back to sites when we receive their data. Meanwhile, Keith Bodger and his team at the Department of Biostatistics at the University of Liverpool are busy analysing the Hospital Episode Statistics (HES) for IBD as part of a Crohn’s and Colitis UK research project. We will begin to see some of the results of this analysis soon; later in the year we will extract the HES data for all patients in the Registry database and be able to analyse the demographics, clinical and HES history for that group.
Colleagues at the sites have worked really hard to upload their data on time – thank you to everyone. We are happy to help any IBD team that needs support to begin collecting and submitting their data. Please contact [email protected] if you have any queries at all.
Find out more about…
Our lovely Data Services Manager is off to run a ski chalet for the winter, and so we are looking for the right person to come and join us in this important role. You will need to be organised and analytical with a customer service mindset - it's all about keeping...read more
We will be closed over the key Xmas and New Year dates (Mon 24th, Tues 25th and Wed 26th December; then Monday 31st December and Tuesday 1st January 2019). For those catching up on data capture in the Xmas quiet period, we are running an essential support service on...read more
Continuing its mission to improve the care that people with IBD receive, the Royal College of Physicians is offering IBD teams an opportunity to participate in a new quality improvement collaborative, consisting of three 1-day learning sessions and supported action...read more
Following the establishment of IBD Registry Limited as an independent not-for-profit company, we have moved offices to: The IBD Registry The Ebbisham Centre 6-7 Derby Square EPSOM KT18 8AG Telephone (unchanged): 0203 393 3969 Contact (unchanged):...read more
If you’re coming to the BSG Annual Meeting in Liverpool next week, do come and say hello to us – we’re at stand B58 in the exhibition.read more