IBD Registry web tool
The web tool is now being made available, and will be especially useful for those sites that are unable to use the PMS or another local clinical system. A brief comparison of the Web Tool and PMS functionality is listed below. To find out more and to register your interest in the web tool, please contact email@example.com
|Real-time data capture at the point of care||Y||Y|
|Ability to generate local reports for service management and improvement||Y||Y|
|Link to PAS data to pull through demographics||N||Y|
|Ability to generate GP letter at point of care||N||Y|
|Ability to generate summary documents for patients and GPs at point of care||Y||Y|
|Searchable lists of patients by drug categories||Y||Y|
|Participation in Registry enabling benchmarking of services performance and activity against national levels||Y||Y|
Find out more about…
Over ten thousand people in the UK with IBD have entered their data over the past few days, many of them giving feedback on the Tool. This has helped us to make sure that the risk levels in the Tool are based on accurate, up-to-date information from patients. In...
Given the special circumstances putting pressure on IBD teams and wider health services, we have created some in-depth articles below in an easy to read format: Switchers: Changing originator biologic to biosimilar Changing originator biologic to biosimilar With many...
With the COVID-19 outbreak and the resulting pressure on IBD clinical teams, the next IBD Registry data submission (planned beginning of April) has been relaxed, so that the next data submission dates will be 10 July followed by 9 Oct 2020. IBD clinical teams should...
Huge congratulations to IBD clinical teams across the country - we have surpassed the 60,000 patient record mark. At time of writing we hold 63,181 records. 62 IBD teams submitted for this last quarter, 24% more than the same period last year. Figure: number of...
PROMs: early benefits for care of IBD outpatients who directly report their symptoms via digital tablet
Pic: Pearl Avery, Clinical Nurse Specialist at Dorset County Hospital, by her clinical poster at ECCO2020, Vienna A UK nurse-led hospital team working with the IBD Registry has announced the success of an initiative to capture data reported directly by outpatients who...