Using an Existing Database
Users of existing databases (e.g. local hospital EPR, Ferring’s ‘Rotherham’ system, Emis, GeneCIS etc) can extract and submit data from their own system (where data fields either match or can be mapped to the Registry specification) using the Registry’s Data Submission Framework.
To find out more about using an existing system to participate in the IBD Registry, contact your system supplier.
To register to participate in the IBD Registry using an existing system complete and submit the registration form
Find out more about...
The IBD Registry team have realised a long-held ambition to use routinely collected hospital episode statistics (HES) data to supplement the clinical data collected by sites, in a ground-breaking initiative led by Keith Bodgerread more
It is with great regret and sadness that we have to inform you of the untimely passing of our friend and colleague Richard Driscoll. Richard passed away on the morning of Saturday 21st October, following a cardiac arrest last week. He is survived by his wife Aviva,...read more
This month the IBD Registry achieved two participation milestones: we moved past 30,000 patient records (up to 31,614) and now have 51 sites submitting data to the Registry.read more
The first quarterly reports will be sent to sites in October. Participating sites will receive a summary profile of the data they have submitted to the Registry in June 2017.read more
The IBD Registry are currently in the process of updating the core dataset, in particular we are updating and amending the list of medications in the drug dictionary…read more