Resources for hospitals

Find all our helpful guides in one place. To download, simply scroll to the bottom of the relevant guide and click the link. And please contact us if there are any other topics you’d like help with.

Useful guides

Using the Web Tool to track KPIs

Monitoring performance against the IBD Registry Biologics Audit KPIs is important for Trusts aiming to achieve the standards for Quality Accounts in England. This guide shows you how to do this using the Web Tool.

Download the guide here

Extracting your data from the Web Tool

This guide describes how to extract IBD Registry data from the Web Tool onto your desktop and how to upload these files to NHS Digital.

Download the guide here.

Retrieve your historic RCP data using the Web Tool

The national IBD Audit run by the Royal College of Physicians collected data on IBD patients for many years. If you took part in this audit you can import your historical data into the IBD Registry Web Tool. Find out how. Site can no longer export their data, this should already have been completed.

Download the guide here.

Web Tool Data Visualisation

The Web Tool has a new data visualisation function that allows teams to track progress against biologics KPIs and respond appropriately. Want a quick introduction to this new feature?

Download the guide here.

Using Infoflex to track KPIs

Monitoring performance against the IBD Registry Biologics Audit KPIs is important for Trusts aiming to achieve the standards for Quality Accounts in England. This guide shows you how to do this using the InfoFlex patient management system.

Download the guide here.

Extracting data using Infoflex

This guide describes how you can extract IBD Registry data from the InfoFlex patient management system onto your desktop.

Download the guide here.

Uploading data to the Registry from an existing EPR

This guide will primarily be used by hospital IT teams. It details the format data must be converted to before uploading to the IBD Registry.

Download the guide here.

Business case resources

Modelling Caseload for IBD CNS CCUK report 2017Download(782kb, PDF)
Business Case ExampleDownload(92kb, PDF)

Other resources

IBD pre-biologics check list AintreeDownload(34kb, Word file)
Simple Clinical Colitis Activity Mar-17 AintreeDownload(23kb, Word file)
IBD Patient PROM and disease score questionnaire v1 CardiffDownload(20kb, Word file)
IBD Patient disease questionnaire v1 CardiffDownload(20kb, Word file)
HBI Crohns Activity-Mar 17 AintreeDownload(24kb, Word file)

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Latest News

HES reports

The IBD Registry team have realised a long-held ambition to use routinely collected hospital episode statistics (HES) data to supplement the clinical data collected by sites, in a ground-breaking initiative led by Keith Bodger

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Richard Driscoll 1950-2017

It is with great regret and sadness that we have to inform you of the untimely passing of our friend and colleague Richard Driscoll. Richard passed away on the morning of Saturday 21st October, following a cardiac arrest last week. He is survived by his wife Aviva,...

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Patient Records Pass 30,000

This month the IBD Registry achieved two participation milestones: we moved past 30,000 patient records (up to 31,614) and now have 51 sites submitting data to the Registry.

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Quarterly Reports out this Month

The first quarterly reports will be sent to sites in October. Participating sites will receive a summary profile of the data they have submitted to the Registry in June 2017.

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We’re updating the drug dictionary

The IBD Registry are currently in the process of updating the core dataset, in particular we are updating and amending the list of medications in the drug dictionary…

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