Information on how to join the Registry

The documents on this page should give you all the information you need to join Registry. If there’s anything more you need, please contact us.

Joining in
More details on the process and what you need to do to join the IBD Registry.
Download here
IT fact sheet
Technical Information for your IT group on the PMS and what they need to do to implement it locally
Download here
Information for Caldicott Guardians – Trusts intending to submit patient data to the Registry
An explanation of how patient information is managed, stored and protected by the IBD Registry in order to seek approval for submission of data from the Caldicott Guardian.
Download here
Information for Caldicott Guardians – Trusts intending to use the Web Tool
An outline of how patient information is managed, stored and protected by the IBD Registry for trusts using the IBD Registry Web Tool
Download here
Business case example
Ideas and examples to help Clinical Leads to build the business case for Trust participation in the IBD Registry
Download here
Local report example
Typical reports that Clinical Teams can generate to inform resources, management and commissioning decisions
Download here
IBD Registry PMS screenshots
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GP letter and patient summary examples
Examples of letters to GP and patient that are automatically generated by the PMS
Download here