DDF 2015

On June 25, 2015 over 120 delegates at the IBD in the UK symposium at DDF heard the inspiring vision of how services can be improved to better serve the needs of people with IBD, and the innovative ways in which technology can be employed to support people, and data used to drive continuous improvement. Speakers from the clinical and patient community gave real insight on how collaboration can improve services and patient care in IBD. You can see the videos here and the powerpoint presentations here.

The IBD Registry Academic Poster illustrating how the registry can deliver tangible local benefits and positive impact nationally can be viewed here.

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Latest News

HES reports

The IBD Registry team have realised a long-held ambition to use routinely collected hospital episode statistics (HES) data to supplement the clinical data collected by sites, in a ground-breaking initiative led by Keith Bodger

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Richard Driscoll 1950-2017

It is with great regret and sadness that we have to inform you of the untimely passing of our friend and colleague Richard Driscoll. Richard passed away on the morning of Saturday 21st October, following a cardiac arrest last week. He is survived by his wife Aviva,...

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Patient Records Pass 30,000

This month the IBD Registry achieved two participation milestones: we moved past 30,000 patient records (up to 31,614) and now have 51 sites submitting data to the Registry.

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Quarterly Reports out this Month

The first quarterly reports will be sent to sites in October. Participating sites will receive a summary profile of the data they have submitted to the Registry in June 2017.

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We’re updating the drug dictionary

The IBD Registry are currently in the process of updating the core dataset, in particular we are updating and amending the list of medications in the drug dictionary…

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